My wife gets frustrated about the lack of understanding of APS among the many doctors she has seen. If only someone had explained to her early on how important keeping the blood thin, even with aspirin, she might've have suffered less.
So, has any patient embarked on a mission to raise awareness of APS among doctors and folks with health problems? (I thought there might be a clever phrase for this, APS Evangelism, perhaps, but that's not quite right because of the religious overtones.)
I think this would give my wife a Purpose. So instead of being a "patient / victim" she can be an "evangelist / warrior / something or other." Because she needs something to distract from the pain, fatigue, malaise besides just appointments with doctors.