Labs for APS

[blizzard2014]

Here is a portion of my labs that prove that I have APS. Just in case there is any doubt. I will post a second thread with the portion of my labs that show whether or not I am LA positive.

[blizzard2014]

I have no LA on that test, but a positive one on another test. I also have Factor 2 Mutation which can interfere with the clotting times. So, I really don't know what to make of it all. I wish I could post more pictures on here to show the conflicting tests. The only antibody that remains extremely high in my case is the Glycoprotein antibodies. The lowest one was 75 positive I believe.

[Dot69]

Thank you that's very kind of you x

[Dot69]

I'm really impressed as to how many of you know so much which I have to be honest and say I don't understand but I so want to. Will I get more information on 'me' when I see a specialist,?

[Lure2 in reply to Dot69]

Hi Dot,

Has I suggested you read "Sticky Blood Explained" by Kay Thackray? Good book to understand a bit more. Also follow this site.

Prof Hughes just recently declared that APS (Hughes Syndrome) is hereditary.

As you live in England have you tried to find a Doctor specialized in autoimmun illnesses (probably a Rheumatologist or ev a Hematologist)? APS has some "cousins"also - Lupus, Sjögrens, Thyroidea-illnesses which are common to go hand in hand with APS rather often.

He knows them all and can take the right blood-samples and distinguish between them and finally give you the right treatment. I am NOT saying you have other illnesses but only want to say that we need a special Doctor when we have got APS.

We all knew nothing to begin with. It has been a long way with many Neurologists that do not "get" what APS is about - too thick blood that has to be thinned at a steady and high level of INR.

I had my first TIA in 2002 and as I had miniclots and miniemboli they could not see anything on my Scans but they suggested i should try Warfarin. I was on baby-Aspirin to begin with and I did not want Warfarin as I saw it as a "rat-poisson" I have all three antibodies in high titres and need a high INR over 3.5 (as prof Hughes also says we need) to feel ok. Warfarin was my "lifesaver"!

Knowledge is power for us!!

Best wishes and hope you find a Specialist for your own safety. Well worth the money.

Kerstin

[Dot69 in reply to Lure2]

Thanks so much for time youre giving with such valuable information I'm waiting now to see a specialist in Leeds I got from off the list of specialists you have I'll keep you informed of progress, I'm quite excited to speak to someone in the know, x

[blizzard2014]

Yeah, I am positive for the AB2GPI antibodies. The cut off range is 20. Anything above a 20 is positive. Being at 98 makes me a high positive. The LA is negative on that test, but I have an extremely high hexagonal phase phospholipid test on another lab. It is all so confusing.

[MaryF Administrator in reply to blizzard2014]

I hope you have a good consultant looking after you now. MaryF

[blizzard2014 in reply to MaryF]

Mary, I found a university to help with the autonomic dysfunction, but might have trouble getting to Dr. Schofield. I will see if they can do a tilt table test and see how bad my BP gets when I'm under stress. At least everyone knows I'm not a troll now. I just wanted to remove any doubt. Thanks everyone!