My recent history is that I was diagnosed with cutaneous follicle non hodgkins lymphoma last October. I had to have a full body CT to check if disease was anywhere else. In doing so they discovered i had a sizable clot in my lung. i am now on clexane for 6 months. At the time i was tested for APS and it showed borderline lupus anticoagulant. i have got to be retested in March I suppose to confirm if I have APS. I have been doing some research online and found out Dr Hughes said one of the symptoms with this condition is teenage migraines which I suffered from badly and also fractured metatarsals. I also had a fractured metatarsal in 2005. it occurred just walking in my lounge! After 2 days of having the plaster cast I developed a dvt behind my knee. I had a positive lupus anticoagulant then. They then tested me 6 weeks later and it was normal, so no further action was taken and had no follow ups.
After I am retested in March I am due to see consultant in June to see whether they will decide if I need warfren going forward. It certainly looks that way to me. I am quite scared with the prospect of being on warfren but also scared of what might happen if I am not anticoagulated. Feeling a bit in limbo at the moment with no actual diagnosis . Am bit worried if lupus anticoagulant is normal in march they may dismiss me again.