Hello APS family.
How is everyone doing?
I am very happy to have found this forum, APS is so little recognize and so many people are not aware of it.
I need some help and some advice from you guys!
About two weeks ago I went to the ER, because of a scotoma on my left eye vision and some zig zag patterns on my peripheral vision. This was the 3rd time this happened to be in the last 6 years. However the ER doctor freaked out and called it a stroke.
After a series of tests such as...
Negative brain CT, negative brain MRI with and without contrast, negative neck MRI with and without contrast, negative echocardiogram, negative carotid ultrasound, negative ANA test. Normal ESR and SED rate tests. Regular PT and PTT tests. Negative lupus anticoagulant test. Normal CBC, normal red blood cells and normal platelets count... all that was left was the cardiolipin antibody test. I tested negative for the IGA and the IGG. But unfortunately tested positive for the IGM, tested positive at 15.3. At that point was told to follow up with a hematologist for possible APS syndrome. I have appointments with a hematologist and a rheumatologist this week, however the anxiety is driving me crazy. I have no history of blood clots and no miscarriages( never been pregnant) and after some research read that for APS it is only considered positive after 40 igm.
My question for you guys is, based on these facts. Do you guys think I might have APS?
Is it normal to have positive cardiolipin antibodies but not have APS?
If I test positive again around same levels in 12 weeks, does it mean I have APS ?
Should I be on any type of treatment till I get an answer in 12 weeks?
I am aware I have to re test in 12 weeks but that feels like such a long and anxious wait !
Please advice !
Thank you all!