As promised here is the update from my appointment Friday with my Rheuatologist. She is very good and understands autoimmune diseases.
She has referred me as a emergency case back to the Haematologist At Canteberry hospital
I should hear next week if not I have to phone up on Friday and make sure I have an appointment ASAP.
She believes (like I do) now that all symptoms especially the headaches are down to APS and that my I N R must be raised as soon as possible.
She said that I should be having injections as well as warfarin so hopefully things will move quickly now
So I just have to wait now! It's day 31 of the headache from hell - that is accompanied by severe, localised pains. I just hope that something is done before it's too late!