After being diagnosed with this a few weeks back, I've stuck my head in the sand and ignored it. Now my next appointment with the haematologist is coming up I thought I better address it and write down my symptoms to see if they fit, because the gumph the doc gave me wasn't informative and basically just said you'll get clots.(i havent) and I was convinced that the diagnosis is wrong. Now I've read the list on 'symptoms olympics' and ticked them off I'm starting to thing she is right after all :-/.
Can I ask tho if constant adrenaline rushes are a common symptom? Without beta blockers I'm just a nervous jittery lump. Also skin numbness around the face and jaw and hand tremours, - which might be part of the adrenaline I suppose.