In 2001 I had a blood test after a miscarriage and was told I had raised antiphosolids I gave myself certoparin everyday of the pregnancy. No further treatment
3 years ago balance went and I couldn't walk. Sent to ent but also took iron and herbs called floradix and after 6 months balance returned.
Have found myself in the meantime breathless a lot but never saw a Dr too busy teaching but it got more difficult and every sentence was hard. I ignored it busy I thought it would pass.
Periods have been all mixed up. Pill was changed it messed me up and I had a very long period light but long which lasted Oct to may June. Full blood count fine.
However my balance and swirling in my head returned memory problems. I saw this site back in March. I asked if it could be this. My go tested me 2 blood tests. Came back normal back in March.
Balance memory dizziness swirling in head continued...got better very briefly then heavy periods like a tap which weren't stopped eventually became anemic on a full blood count . They then tested me for ferritin which was 5.
I thought this was the answer and I think it might still be. I had a stroke scare on new years night though my hand was numb weak tingling and I did pass the fast test so I was taken via 999 to hospital and spent 3 days being assessed for stroke. Whilst I was in a noticed a lump in my left arm on the bend inside elbow on the bend if that makes sense. It aches it hurts but so too does my hand and then my right hand too. Although left far worse same side as lump.
The lump hasn't been investigated yet my hand burn some times my feet. My hip aches my knee aches and they. I am 42 I shouldn't feel like ghis I am bed bound mostly. I am taking gabapentin and waiting to see specialists meanwhile heavy periods hit again. They want give me any hormones to stop them incase I have cervical cancer. Waiting for biopsy result.
When I saw my gp today I told him about all the aches and pains spreading. Some times the sharp pain in my fingers wrists and toes comes really suddenly and then goes but the ache in hip knee and shoulder is a different pain. He said might be a connective tissue disease. I Google it and saw antiphosolids syndrome in the list. And I thought oh my goodness.
Does anyone have any thoughts???? Help or advice. I have lost my career. My life is no longer recognisable. So if anyone can relate to these symptoms I would be grateful. I am also very breathless. I have seen ent x2. A neurologist, a urologist I had kidney pain for a few months unexplained by ct scan. I have an appointment with a cardiologist in march a elbow specialist in a week. Mri scan no bleed on brain...ane atheists wouldn't give my any pain relief for recent biopsy due to possibility I had had a tia so very painful...everything is a bit difficult to solve. Is this all ferritin or could this also relate to antiphosolid syndrome. Apologises for any mistakes. Would be grateful for any advice. Help etc 😀
thank you for reading