Hello everyone. I haven't posted in a while (diagnosed Aug 2014, full thyroid workup normal, live in S. California, state insurance so no choice in my drs.)
I have mild Hughes in that I've not had a clotting event, but I have chronic pain, headaches, brain fog, fatigue, etc. I have tested positive with cardiolipin antibodies late 2014 and after starting baby aspirin felt an IMMEDIATE response, but it has since dissipated. I kind of wax and wane. I'm on other blood thinners, non rx (high dose fish oil, Nattokinase [this is being used in integrative cardiology in lieu of coumadin with much success)
I have no access to an informed APS doctor, but my primary is somewhat familiar with it and is helping. Although she is a licensed physician and is working with me, she is not comfortable prescribing Warfarin or other rx anticoagulants.
Anyway, I have been doing research and have found some evidence that IV fluid therapy can help with symptoms.
Since we have sluggish blood, this would make sense as I feel like my symptoms mimic dehydration.
Just wondering if anyone has any input. I will be starting IV fluid therapy three times weekly for one month and will see if that has any effect.
Have a great day!