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Sticky Blood-Hughes Syndrome Support
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IV fluids

Hello everyone. I haven't posted in a while (diagnosed Aug 2014, full thyroid workup normal, live in S. California, state insurance so no choice in my drs.)

I have mild Hughes in that I've not had a clotting event, but I have chronic pain, headaches, brain fog, fatigue, etc. I have tested positive with cardiolipin antibodies late 2014 and after starting baby aspirin felt an IMMEDIATE response, but it has since dissipated. I kind of wax and wane. I'm on other blood thinners, non rx (high dose fish oil, Nattokinase [this is being used in integrative cardiology in lieu of coumadin with much success)

I have no access to an informed APS doctor, but my primary is somewhat familiar with it and is helping. Although she is a licensed physician and is working with me, she is not comfortable prescribing Warfarin or other rx anticoagulants.

Anyway, I have been doing research and have found some evidence that IV fluid therapy can help with symptoms.

Since we have sluggish blood, this would make sense as I feel like my symptoms mimic dehydration.

Just wondering if anyone has any input. I will be starting IV fluid therapy three times weekly for one month and will see if that has any effect.

Have a great day!


3 Replies

HI I have no knowledge of the therapy you mention, with regard to treating you disease, but presumably you have discussed it with your main consultants, (who understand Hughes Syndrome/APS).



I haven't heard of this either-what is in the IV fluid? Is it just normal hydrating water+saline or does it have other additives? Look forward to see if it's been helpful.


Hi ehc, I'm so curious about the nattokinase? How much do you take and how do they monitor it? I haven't heard of the iv fluid thing that sounds interesting,. My mom has bought me some nattokinase in case something were to happen and I couldn't get medication. I would love to hear back from you.



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