Antibodies?: I have hypothyroidism. I... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,411 members10,622 posts

Antibodies?

Nanny23 profile image
5 Replies

I have hypothyroidism. I also tested positive for anticardiolipin for APS. Have to go for 2nd test still. When I 1st started on synthroid helped but now sptoms coming back. Never tested for antibodies though. Being I tested positive for anticardiolipin I thought I should be tested for thyroid antibodies too. I do go on thyroid U K some valuable info there as on here. Just wanted to know from this forum too if it's possible to go together.

Written by
Nanny23 profile image
Nanny23
To view profiles and participate in discussions please or .
Read more about...
5 Replies
MaryF profile image
MaryFAdministrator

Hello yes it is quite common to have a thyroid problem with Hughes Syndrome/APS, and often for it to be Hashimotos. Not everybody suits the synthetic thyroid medication such as Levothyroxine or Synthroid, and some people do better on Natural Desiccated Thyroid. I enclose an article about Hilary Clinton: dailymail.co.uk/news/articl...

MaryF

Nanny23 profile image
Nanny23 in reply toMaryF

Thanks so much Mary. Going to dr.tomorrow. Hope he listens. Drs only se convened with THS blood test. Frustrating cause he says he needs to investigate APS test results too. Sounds like I need to find a dr. Who specializes in auto immune disease. VERY FRUSTRATING

MaryF profile image
MaryFAdministrator in reply toNanny23

As you have looked at the TUK site, you will have seen the recommended tests, I do all of them.... as the TSH is useless! MaryF

Bravogirl16 profile image
Bravogirl16

Hi I agree with Mary. Yes you can have antibodies positive for thyroid too. My antibodies were positive too, I have other autoimmune conditions. But as per my understanding, unfortunately on therapy the antibodies level go down quite quickly and disappear after a while. I have been negative for antibodies within a year of treatment. This is a reason why many clinicians are not so willing to do thyroid antibodies on thyroxine treatment. That's what I was told when I asked for a repeat.

When were u diagnosed?

May be its something u could get done privately so u get ur answers, if ur doc is not helping.

Bw xx

Nanny23 profile image
Nanny23 in reply toBravogirl16

Don't remember when I was diagnosed. Just trying to cover all bases. I'm really confused to be honest

Not what you're looking for?

You may also like...

What happens if your anticardiolipin antibodies fall to negative?

My anticardiolipin antibodies tested positive 3 years ago after I had a staph infection on my legs...
viv112 profile image

Positive IgG anticardiolipin antibodies

Hello After 5 years of symptoms (initially thought to be MS) I have finally had two positive IgG...
bathouse profile image

Worried about going under...

Hi everyone, I'm due for a colonoscopy on Monday and are freaking out. Just to give you a little...
Crogers profile image

IgG antibodies, translation please

I have been told my IgG anticardiolipin antibodies are elevated at 26, my beta2glycoprotein and IgG...
Twadd profile image

Newbie

Hi everyone I am new to the board and had a question for you all. Back in February of this year I...
Crogers profile image

Moderation team

See all
lupus-support1 profile image
lupus-support1Administrator
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.