Help!: I cane home from surgery with a... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Help!

Fusch profile image
10 Replies

I cane home from surgery with a catheter fitted. Woke up rosay with bag full of blood.

inr is 3.2 -gave been on clexane 100mg alongside warfarin since op

Am waiting to see emergency Dr

Think this is likely a one off/bladder injury or kidney related/platelets /heparin?

What would you do?

Emergency nurse couldn't even spell antiphospholipid

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Fusch profile image
Fusch
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10 Replies
Fusch profile image
Fusch

Woke up TODAY

Manofmendip profile image
Manofmendip

Hi there.

We cannot advise you what to do, as we are not medically qulified but, if it were me, I would go to your GP, firstly, or to A&E.

Dave

Fusch profile image
Fusch in reply toManofmendip

I was just seen at the urgent care centre, which is by the warfarin clinic.

They didn't really have much to say ... Could be damage from the catheter ... If I get fresh bleeding might need warfarin reversed so go to a and e.

I have a feeling they should be doing a full blood count but right now I just want to go to sleep.

I hate having an illness where your average doctor doesn't know very much. And also that feeling of wondering if surgery will have set something off - I think it was fracturing my Shoulder in the first place that sent my antibodies sky high

Fusch profile image
Fusch

I phoned the urology nurse who gave me the appointment to have the catheter removed on feb 29 - she got a doctor who said not to worry if it's like rose wine ... When I said it was like Merlot they said that if happens again, go to a and e

Lure2 profile image
Lure2 in reply toFusch

It is positive you know the name of the wine .......! Bless you Fusch! Tell us what happens. I cross my fingers now.

Kerstin

Nanny23 profile image
Nanny23 in reply toFusch

Any things better than bovine colostrum lol. Hope you get well soon

Fusch profile image
Fusch

lol. I guess I just take it easy, drink plenty of fluids and hope it was a one off

Ozchick profile image
Ozchick

Hope you get to Chardonnay status real soon!

In my prayers. Not always easy, this disease. The time passes slowly when the answers are not forthcoming. Stay on this website, for the members, contributors, and administrators are, sometimes, my only release...OR relief!

CheddarAddict profile image
CheddarAddict

Hope all has settled down now and hope you was chuckling as loudly as I did on the ol Wine referencing may even start using similar to that as my new APS 'Feeling' guage starting at Lager aiming for a Light Ale knowing when it's getting a bit Guinness hoping never a Homebrew Stout...

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