Patient day notes.: Hello all, Does... - Hughes Syndrome A...

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Patient day notes.

Tinythepanda profile image
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Hello all,

Does anybody know if we would be able to view or buy the notes from this years patients day?

I've read previous years and found them very informative and would be interested to hear if they will be accessible again this year.

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Tinythepanda profile image
Tinythepanda
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MaryF profile image
MaryFAdministrator

I am sure Kate HIndle, at the charity HSF will be able to update us on this soon, also there is to be a film of the event available, once I have finer detail, either she or I will announce on here. MaryF

Yes, there will be a film and PDF to download. I'm working on it at the moment with a wonderful pro bono editor, but I've just been away on holiday so that's slowed the process down and now I have to catch up on the patient enquiries etc.

I will post on here and all our other channels once things are up and running :)

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