It's been a long time since I posted on here. Last time it was to talk about my frustration about having to wait for an immunology referral until my recently diagnosed sleep apnoea was being treated. I've now been using a c-pap machine for almost a year but, although I no longer fall asleep at my desk, I am still constantly fatigued. The worst problem at the moment is the pains in my joints. Fingers and wrists are the worst, but knees, ankles, neck, hips and everything else regularly make their presence felt. Some days I feel I could identify every joint and muscle in the human body because they all hurt.
I am going to my GP in just over a week. There is one at my practice in Bracknell who, I found out last year, worked with Prof Hughes for a while. The rest of the practice know nothing about APS so I've waited until I can see the right one.
My problem is that I'm still worried I will get fobbed off and told a referral can't be done until I've lost some of the huge amount of extra weight I'm carrying. I'm scared all the time of this getting worse, of the doubting looks I get from other people (some of whom also blame my weight). Just because they can't see anything wrong they think I'm exaggerating.
Any advice on how to handle the GP and/or my doubting colleagues and loved ones?