Hi there. Does anyone have any tips or solutions dealing with the wave of fatigue that hits. It seems to be almost constant at the moment so just rest isnt an option. I'm practically on my knees and haven't even started my working week (Thurs-Sat) yet!
Only been back at work 2 weeks after 4 months off so time off isn't an option either. Would still like my job to be there when I finally get on top of all this
Just to add I am already on Planqui. Been on it about 6 weeks? Joints are easing up but no improvement on the fatigue side yet.
Hi, firstly well done on starting the Plaquenil, it is slow to come up to speed, my daughter had no difference with it until she got to three months and more so at 5 months. Have you checked all other aspects of your health, ie a blood test with the GP to look at vitamin D levels, also ferritin (iron) and B12 etc, as if any of these are on the low side it will certainly exacerbate your fatigue, also presumably your doctors has checked your Thyroid? Hope you feel better soon. I certainly have to pace myself with everything I do. MaryF
Thanks for the reply. Will hold out hope for a little longer on the Planequil. Last lot of bloods were all a little low so take supplements and Thyroid is apparently fine. Everything just feels one step forward then two back at the moment. Trying to get back to "normal" after a prolonged migraine attack (weeks) a few months ago seems impossible right now but its good to hear that with a little more patience there may be some light and the end of the tunnel.
I agree with what Mary has said, also, it's worth checking your diet to see if anything in your diet is adding to the fatigue. I find if I eat a lot of dairy, wheat or potato based products, my symptoms become worse! Unfortunately for most of us it's a bit of a juggling act, as we all have varying symptoms. I was diagnosed five years ago, and I'm still trying to get to grips with things. I do find this forum very useful though, as people are willing to share their experiences, and there is always someone here to help. Of course we are not medically trained, so cannot advise you on certain things, as only GP's can. I hope you are feeling better soon, and don't forget to let us know how you get on xxx
Have any doctors mentioned the possibility of gluten intolerance? I found out I was gluten intolerant about 10 years ago when I was 50. I had been sickly for much of my life. After going gluten-free my energy levels rose dramatically. For the first time in my life I knew what normal was supposed to feel like. I would suggest a gluten free trial except the blood test for gluten sensitivity, the GTT test, will not be accurate if you are already on a gluten-free diet. Which means you may never get a medically accepted diagnosis of gluten sensitivity. Unless you go back to eating gluten in order to get a positive GTT test. There is a story --or legend? -- I read online of some guy in TX who had to deliberately make himself sick by returning to gluten in order to get the positive test so he would qualify for disability benefits. It took two years of being sick again before the GTT test turn positive. Real story? Or legend? But you might bring this up with your doctor. The more research is done the more connections are found between food allergies – particularly gluten – and autoimmunity. Good luck.
I have to agree with the gluten being a possibility. Why not get tested for it first before trialling gluten free. Then you will have the results either way. But even if it comes back negative its worth giving it a try to see if it makes a difference.
I went gluten free before being tested and improved so much I am never going back to gluten in my diet so I will never have an official diagnosis. But its not worth being so ill that I can't function again just to get an official diagnosis.
Another thing to test for is folate ...make sure you aren't deficient in that. If you don't eat much bread or grains you won't be getting enough folate.
Extreme Fatigue with APS?
Is warfarin not the med for aps anymore...if not what other anticoagulants do they give?
Seeing my Neurologist 
