Deep tissue massage: Hi, Does anyone... - Hughes Syndrome A...

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Deep tissue massage

ShannonKennedy profile image
14 Replies

Hi,

Does anyone know if deep tissue massaging is recommended for someone with APS?

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ShannonKennedy
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14 Replies
Manofmendip profile image
Manofmendip

Hi

I have no idea but it might not be a good idea for a patient on Warfarin, if there is a chance of inducing bleeding in the muscles.

I have had massage but I am on Fragmin.

Dave

ShannonKennedy profile image
ShannonKennedy

Thank you Dave, no longer on warfarin and now taking Apixaban. Just with all the joint aches and pains I thought a massage might help sooth the pain.

mylafont profile image
mylafont

I used to get regular deep tissue massages, but it was before I was diagnosed. Dave makes a lot of sense if there is a chance of bleeding in the muscles.

Sal0712 profile image
Sal0712

I'm with Dave on this one!

merrohawk83 profile image
merrohawk83

Also not a good idea if you have recently had clots anywhere, for obvious reasons!

tassie profile image
tassie

I have regular osteopathy and have had deep tissue massage as well without any bruising. The deep tissue massage I was quite sore and tired after as I think it can release lots of lactic acid. It definitely wasn't relaxing. If you want a relaxing massage I'd go for something less "aggressive" ... there are many types of massage.

But check with your medical team first.

Nanuuk profile image
Nanuuk

I enjoy sports massage. I don't play sports, with lupus, APS, raynauds, sjogrens +spina bifida - I do however love the 'warm up' massage because it does what it says, meaning I can move freely! :)

Ps - I'm on warfarin

donnabrain profile image
donnabrain

I have been having some deep tissue massage as part of my phsio sessions for thoracic outlet syndrome(I also have APS)

I find it quite painful and am sore for days after

As said above, you may wish to try something more gentle,like a nice aromatherapy massage

Someone asked a similar question a while ago, so we researched it and the answer is no if you are taking warfarin.

Please see the thread: healthunlocked.com/hughes-s...

Hope this helps.

DataOdyssey profile image
DataOdyssey

Late December 2014 and early January this year, I had about 10 sessions of deep tissue massage. It was painful to begin with, then as the sessions progressed, the pain began to recede to the point where it was no longer as painful as it was initially.

I'm on Warfarin and the thought of muscle bleeding and clots didn't even occur to me - only when mentioned here, right now. Oops!

The good news is that after the first 3 sessions, I felt amazing, like a million dollars! I felt less tired, was a great deal more active - especially at work, and had lots more energy during the day.

Initially, I went for back massages, which were great for my cervical spondylitis. The pain there totally disappeared. And my sense of taste that had been missing for weeks came back.

Then I went for full body massage (both deep tissue treatments), and that was great too.

Alas, I had to stop. At £40 a session for full body, and £20 for the back, I simply couldn't sustain paying for it out of my pocket.

Months later, all the pain is back everywhere; and I'm in agony every day. I'm saving money for more sessions.

So, for me, with APS, Lupus, Sjogrens and peripheral artery disease, it really worked great, though the sessions did hurt a bit initially.

Hope that helps.

ShannonKennedy profile image
ShannonKennedy

Thank you everyone for your replies :) I shall keep you all posted

mburns1401 profile image
mburns1401

Obviously, this issue, maybe even more than most, depends person by person. I'm weighing in here because I've received good results and pain relief from massage and I'd hate to have one of my fellow sufferers lose out on those benefits on general principles. So here's my experience.

The typical, overwhelming fatigue from Hughes/APS can keep many of us more sedentary than we'd like to be--the result of which is tight shoulder and neck muscles that tend to exacerbate the headaches that we suffer. Massage, along with stretching techniques, can help a lot. And scalp and face massage also helps with the headaches by increasing blood flow. So, what to do?

All massage need not be "deep tissue" to derive benefits. A skilled masseuse/body worker can "work their way" into the inevitable knots, gently and slowly. In the meantime, we can assess if that restrained approach provided benefits without problems, or, whether to allow deeper work in subsequent sessions to derive, possibly, even more benefits.

The point is that there are real benefits to massage. You are the boss and can calibrate the session to your particular needs. As we've all learned, when it comes to our disease we need to take an active role. Same pricipal applies here.

Salty profile image
Salty

I am on apixaban and plavix and have been getting deep tissue massage every week on this dual blood thinner treatment for years without any issues.

IsaCampbell profile image
IsaCampbell

You can massage with the small suction cup for deep tissues. It help to improve the tissue which finally results in better skin and reduction of skin issues related to skin tissues.

You can have small suction from cellublue

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