As an Hughes Syndrome patient I'm aware of foggy head symptoms which I'm currently experiencing, however this is now joined with upper and lower jaw pain......
I'm currently redecorating the whole of my 3 bed semi house to put it on the market, could the jaw pain be more to do with the stress of my current situation or to do with my Hughes Syndrome?
It's starting to get me down now.
HI, jaw pain can come about from a number of things, anything from grinding your teeth in your sleep, this: nhs.uk/conditions/temporoma... Also it can indicate in some causes a more urgent problem. I can't give you medical advice, but I would go and check it out with the GP explaining clearly your underlying conditions. MaryF
Thank you, I'll call my GP on Monday.
Hi
I agree with my colleague, Mary.
I would also see your dentist and, I personally, see a cranial osteopath when I get jaw pain and he has never failed to settle it down.
Best wishes.
Dave
For what it's worth, I also had significant jaw pain until I was properly anti-coagulated (along with scary numbness in the face). So perhaps a greater focus on your ideal INR might be in order. May or may not fix your current issue, but on a global basis might put you in a better place than you are now. Good luck.
As mentioned there are many reasons for jaw pain but jaw pain can be a sign of a heart attack too so best to get it checked sooner rather than later.
I agree with Mburns 1401.
I have had jaw-pain and dental-pain with no explanation.
I am not a doctor but I have got APS and I have had Eye/ear/balance symptoms and a Specialist on these areas explained to me that I had microembolies. So tiny clots not seen on MRI because we have too thick blood!
Have you found an APS-specialist now ? Such a doctor and anticoagulation is a good start to feel better.
Also read "Sticky Blood Explained" by Kay Thackray. It is some years now but still relevant and the symptoms are the same. She has got the illness herself and writes about how it is to live with this illness. It is also a good reading for relatives to be able to understand us better. I have got it in pocket.
Good luck from Kerstin in Stockholm
Hi, I've had tmj problems for years. That is pain in the joint that connects the jaws. It also causes bad Headaches. I was told for years it was stress, teeth grinding..... I've had many dental splints to try and help. This year when I mentioned to my hemotologist, she just said, yup, tmj problems are part of the syndrome!
Thank you to everyone who has left me messages on this topic.
It's so nice to know that we're all here to support each other. X
Head shot (new to this) 
Pain and tenderness over ribs on right side. Anyone else experienced this?
Hughes syndrome and painfull bladder syndrome
What's in a name?
