Any APS doctors in Maryland/Delaware/Virginia

[drob32]

I was searching for doctors using google, but I wanted to see if anyone knew of any doctors in this area. The closest doctors based on the apsactionnetwork were in New York and North Carolina.

Thanks

[Hidden]

Michael Streiff at Johns Hopkins (410-502-8642)

[drob32 in reply to Hidden]

Do you have experience with him?

I also saw Michelle Ann Petri at Hopkins, and her experience with APS.

[Hidden in reply to drob32]

He's my hematologist. He is great!

[drob32 in reply to Hidden]

Is he treating you for APS? Does he give hepparin and plaquenil, etc?

[Wittycjt in reply to Hidden]

Where is he, what state?

[MaryF Administrator in reply to drob32]

Great to see the localized knowledge coming in! MaryF

[Hidden]

Yes to all questions.

[drob32 in reply to Hidden]

How are you doing on his treatment plan?

[Hidden]

Well.

Just today I had a flare up which possibly stemmed from a reaction to Amoxicillin. He answered all my emails, and called my twice. I have a treatment plan, and he ordered a new set of blood tests for me to take on Monday.

I couldn't ask for more.

He is top notch.

[Holley]

I'm in Washington DC. My doctor is Dr. Craig Kessler, head of hematology, at Georgetown University Hospital 202-444-2223. He's fantastic.

[terah1964]

I am in NVA / DC area, and have APS and Sjogrens, I have been through the wringer the last 8 months, Sjogren flare ups, PE's, cognitive issues, fatigue, Headaches-the worst ever Headaches, muscle fatigue, medication errors,,, seizures, chorea, speech changes, balance issues and just all over Pain.

I could go on, but this info regarding APS doctors in this area is refreshing. I had given up hope with the military system, as my hub's is a retiree, they didn't seem to know what APS was, other than it causes DVT's.... Yes I took them print outs and tried to inform them.

It seems at our US military hospitals, they are quick to tell you," well you don't fit in our box with these symptoms so it must be in your head". I went so far as to have NeuroPsych(sp?) testing done to see if that was the case, the reports came back that its not conversion disorder, its organic. .

I finally got to see a sjogrens specialist at JH, Dr Grader-Beck, and he is helping me to get to their hematology and neurology clinics. He has called me directly and responds to emails, I was shocked at the level of interaction from JH in general. I asked him about seeing Dr. Michelle Ann Petri and will hopefully be getting that referral soon.

I was just released from the hospital a week ago after another PE while on xarelto.. it was about that time the military Dr's finally started listening to me about all this. I recently switched to Lovenox injections twice a day and I am just now starting to feel like a human and some of the issues are lessening,, although not perfect.. I feel so much better..

Thank you for letting me go on like this and Thank you for this ray of hope, it was exciting to see some local input on here regarding Dr's that can and do help with this disease.

T

[drob32 in reply to terah1964]

Glad to hear you are heading in the right direction. For me, I don't have a history of PE's or DVT's, so it seems my symptoms are "non-traditional."

[terah1964 in reply to drob32]

Drob32, I hope you find the right Dr. for you, please let me know how it goes I am interested to know your experience with JH or which ever you choose.

best!

T.