Hi all, new here as although I have had a diagnosis of APS for 8 years I didnt know it also went under the name of Hughes syndrome. it was only when looking if APS was defined under the Disability Discrimination Act for purposes of work that I found it. yippee.
my story, well not to be too disheartened, I have had 4 multiple P.E's and 1DVT. the last occurring in Sept 14 despite being medicated. it was a huge wake up call as I was blase about the APS thinking the medication would protect me, how wrong I was and after a few months of being fixated on my mortality following the last P.E I have finally come through the other side and I am feeling stronger in myself again.