Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,378 members • 10,571 posts

All posts for December 2014

Lupus centre, London bridge

Just a quick update to say that my husband had his consultation with Dr Khasmana yesterday and for the first time in months we feel that there may well be a...

Just a quick update to say that my husband had his consultation with Dr Khasmana...

Lorraine44

•10 years ago

6 Replies

I think I might be suffering from Hughes Syndrome . If so I will have discovered my life long illness thanks to this site .

I suffer from severe brain swelling at night & pop 2 Ibuprofens to reduce my swelling , have severe dizzy spells ....EXTREMELY SEVERE , can never get on fair...

I suffer from severe brain swelling at night & pop 2 Ibuprofens to reduce my swe...

KickAssK32

•10 years ago

5 Replies

Bone marrow Abnormalities and APS

Hi Just wondering if there is a link between bone marrow abnormalities and APS? I had a bone marrow biopsy at my local hospital and it has shown abnormalities...

Hi Just wondering if there is a link between bone marrow abnormalities and APS? ...

beckyb

•10 years ago

4 Replies

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Building muscle while on warfarin

Hi guys, Is there any risk of internal bleedIng when building muscle while on warfarin? Thanks in advance.

Hi guys, Is there any risk of internal bleedIng when building muscle while on ...

Dev82

•10 years ago

2 Replies

I have a question about Bells Palsy!

I was wondering if any of the admins on this site can pose this question to Dr. Graham Hughes. I've been chatting with a few other APS sufferers about my third...

I was wondering if any of the admins on this site can pose this question to Dr. ...

Hidden

•10 years ago

5 Replies

Stop aspirin in third trimester

Hi all of you again. I am 29 week in my pregnancy with APS and therapy with aspirin 100 and clexane 40mg . My gynecolgyst want to stop aspirin in 30 week...

Hi all of you again. I am 29 week in my pregnancy with APS and therapy with asp...

Glassart

•10 years ago

7 Replies

Also can.not see where to vote

Dont see where to vote

windless22

•10 years ago

1 Reply

Rivaraxoban

So.....I have Hughes with very high levels of antibodies. I was on Fragmin injections which I got on with very well. However, after a consultation in October...

So.....I have Hughes with very high levels of antibodies. I was on Fragmin injec...

CalebJacob

•10 years ago

13 Replies

Appointment lupus unit at Guy's Hospital and worried

I have an appointment coming up after christmas as The Lupus Unit at Guy's hosptial and am getting stressed about it. I know it will help seeing someone who...

I have an appointment coming up after christmas as The Lupus Unit at Guy's hospt...

teadonna

•10 years ago

3 Replies

Blood Tests

Hello. Would someone be able to help please. I am at Guys Hospital tomorrow and will be having bloods taken in relation to Hughes and Lupus. I think my...

Hello. Would someone be able to help please. I am at Guys Hospital tomorrow and...

crista1

•10 years ago

5 Replies

How many here suffer dizziness?

Just wondering how many here suffer dizziness and if so to what extent and have you found anything that has helped? Probably one of my first symptoms of APLS...

Just wondering how many here suffer dizziness and if so to what extent and have ...

tassie

•10 years ago

15 Replies

Saw a specialist in NB Canada

Hi all. Last time I wrote, I was heading off to see a specialist (rheumatologist) that was suppose to be more knowledgeable about APS. Although, my glyco...

Hi all. Last time I wrote, I was heading off to see a specialist (rheumatologis...

danluc

•10 years ago

2 Replies

Cranberries

It's that time of year again, but it's my first Christmas on warfarin. What is the concensus about eating cranberry sauce? I've heard many different theories...

It's that time of year again, but it's my first Christmas on warfarin. What is t...

Gerardina

•10 years ago

18 Replies

Anti phospholipid antibody with Hemorrhagic disorder

I have a rare blood disorder and I inject Arixtra(Fondaparinux) at this time. Heparin and Agatraban both had the opposite effect on me. Due to the expense,...

I have a rare blood disorder and I inject Arixtra(Fondaparinux) at this time. H...

Coblondie13

•10 years ago

4 Replies

Is it APS?

I have Hughes syndrome but I'm posting about a friend. She developed blood clots on the lungs 7 years ago and nearly died. She had all the tests and was told...

I have Hughes syndrome but I'm posting about a friend. She developed blood clots...

Hopingforababy

•10 years ago

2 Replies

Pregnancy and APS / Lupus

Hi all, want to provide an update in the hope of giving someone some encouragement around this issue. In July 2013 I was diagnosed with APS and Lupus...

Hi all, want to provide an update in the hope of giving someone some encouragem...

sydney_mrfox

•10 years ago

6 Replies

My trip to London :-)

Firstly i would like to thank all that steered me in the right direction, if it wasn't for stumbling across this site i wouldn't have received a firm...

Firstly i would like to thank all that steered me in the right direction, if it ...

Jillymo

•10 years ago

14 Replies

Recovered from surgery...

Checking in...the surgery for blood mass's is successful. My surgery recovery time is well on it's way. It has been two months now. I feel so much better...

Checking in...the surgery for blood mass's is successful. My surgery recovery t...

beccafullcircle

•10 years ago

8 Replies

referral at last!!!

been back to the gp all blood tests for b12 and ferritin normal. hair still thin and now I have rashes on my wrists and hand. gp made a referral to demotology...

been back to the gp all blood tests for b12 and ferritin normal. hair still thi...

sarahlou1801

•10 years ago

4 Replies

Devil's Claw & Anticoagulants

Evening all, Has anyone here ever used devil's claw whilst on anticoagulation? If so please can you let me know what anticoagulant you were taking and how...

Evening all, Has anyone here ever used devil's claw whilst on anticoagulation?...

jojo-lianne

•10 years ago

1 Reply

Not sure if numbness is from the APS or from issues with my neck

Hi everyone I was diagnosed with APS in 2005. Prior to that they said I had 'probable' MS this was back in 1994-5 after I had an MS like episode that left me...

Hi everyone I was diagnosed with APS in 2005. Prior to that they said I had 'pro...

Juejue11

•10 years ago

13 Replies

New study: Limiting eating to daytime (10-12 hours) lowers cholesterol, body fat, and glucose levels with same food choices. You?

There have been previous studies that show giving up "eating late at night" helps with diet and health. This new study shows how in a short period of time,...

There have been previous studies that show giving up "eating late at night" help...

Tranquility1

•10 years ago

2 Replies

New Study: all patients with TIA or mild stroke should have CT scan within 24 hrs as predictive of future stroke.

This is an important study. I am going to keep a copy of this one with my medical records. Putting the right study in front of the right doctor at the right...

This is an important study. I am going to keep a copy of this one with my medic...

Tranquility1

•10 years ago

6 Replies

An Article off The Daily Express

http://www.express.co.uk/life-style/health/543590/What-is-ME-disabled-model MaryF

http://www.express.co.uk/life-style/health/543590/What-is-ME-disabled-model Ma...

MaryF

Administrator•10 years ago

1 Reply

INR win!

Hi everyone, After my appointment yesterday with my rhuematologist, I can finally go back to my GP and insist they change my INR range. The consultant is...

Hi everyone, After my appointment yesterday with my rhuematologist, I can fina...

jojo-lianne

•10 years ago

3 Replies

New studies/articles regarding Hughes Syndrome/Antiphospholipid Syndrome

1: Poulton K, Ripoll VM, Pericleous C, Meroni PL, Gerosa M, Ioannou Y, Rahman A, Giles IP. Related Articles Purified IgG from Patients with Obstetric...

1: Poulton K, Ripoll VM, Pericleous C, Meroni PL, Gerosa M, Ioannou Y, Rahman...

MaryF

Administrator•10 years ago

4 Replies

Seronegative Hughes Syndrome/APS A NEW SECTION on the actual charity website.

Today I received a very refreshing email from Kate Hindle at the charity, there is now a new charity page which I link below:...

Today I received a very refreshing email from Kate Hindle at the charity, there...

MaryF

Administrator•10 years ago

15 Replies

Stress

So new question we are all tired has anyone made the decision to stop working and felt better or able to Increase your quality if life? I'm not sure how much...

So new question we are all tired has anyone made the decision to stop working an...

Needsanap

•10 years ago

7 Replies

Stroke risk

I was diagnosed in 2012 and have been on warfarin after having 2 strokes. I also have MS my recent Mir shows new multiple cerabeller infarcts. Does this...

I was diagnosed in 2012 and have been on warfarin after having 2 strokes. I also...

Needsanap

•10 years ago

3 Replies

APS

Hi I am going to the hospital to have a tooth out on Saturday because the dentis can not take it out cos I am on warfarin as any body been and had this done...

Hi I am going to the hospital to have a tooth out on Saturday because the dentis...

Lesley61

•10 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2014

Lupus centre, London bridge

I think I might be suffering from Hughes Syndrome . If so I will have discovered my life long illness thanks to this site .

Bone marrow Abnormalities and APS

Building muscle while on warfarin

I have a question about Bells Palsy!

Stop aspirin in third trimester

Also can.not see where to vote

Rivaraxoban

Appointment lupus unit at Guy's Hospital and worried

Blood Tests

How many here suffer dizziness?

Saw a specialist in NB Canada

Cranberries

Anti phospholipid antibody with Hemorrhagic disorder

Is it APS?

Pregnancy and APS / Lupus

My trip to London :-)

Recovered from surgery...

referral at last!!!

Devil's Claw & Anticoagulants

Not sure if numbness is from the APS or from issues with my neck

New study: Limiting eating to daytime (10-12 hours) lowers cholesterol, body fat, and glucose levels with same food choices. You?

New Study: all patients with TIA or mild stroke should have CT scan within 24 hrs as predictive of future stroke.

An Article off The Daily Express

INR win!

New studies/articles regarding Hughes Syndrome/Antiphospholipid Syndrome

Seronegative Hughes Syndrome/APS A NEW SECTION on the actual charity website.

Stress

Stroke risk

APS

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