Firstly i would like to thank all that steered me in the right direction, if it wasn't for stumbling across this site i wouldn't have received a firm diagnosis.
What a lovely compassionate gentle man Prof Hughes is, not only did he show great interest in my case he listened to what i had to say.
He tells me i am classic of what he referred to as the patient of the month ! He diagnosed
Together with my thyroid issues i now need a bit of fine tuning he told me.
I am now awaiting results of a DNA test taken today, results will be given on Friday together with a follow up appointment.
I have come out of the consulting room feeling as if i have achieved something today.
Thank you all so very much as i can honestly say i had given up hope, i can only say to fellow suffer's is dont give up. Jillymo xx