referral at last!!!: been back to the... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,356 members10,544 posts

referral at last!!!

sarahlou1801 profile image
4 Replies

been back to the gp all blood tests for b12 and ferritin normal. hair still thin and now I have rashes on my wrists and hand. gp made a referral to demotology for me. will they deal with my aps issues also.

Written by
sarahlou1801 profile image
sarahlou1801
To view profiles and participate in discussions please or .
Read more about...
4 Replies
MaryF profile image
MaryFAdministrator

Great, and please make sure crucially that your vitamin D is checked and also your thyroid looked at be very suspicious of your Thyroid.. have you lost any hair on your eyebrows? The thyroid tests are pretty unreliable but still show up in some people, something which may alert a GP. It it vital that you look at these other things but well done with the iron and b. MaryF

sarahlou1801 profile image
sarahlou1801

no hair loss on eyebrows but will def mention the other tests thanks mary x

MaryF profile image
MaryFAdministrator in reply to sarahlou1801

Yes I looked back through threads via yourself to make sure I had mentioned this before. If you are low in vitamin D you will feel awful, and also please see this. dailymail.co.uk/health/arti...

It is one of the first things you should look at with hair loss.

MaryF

MaryF profile image
MaryFAdministrator in reply to sarahlou1801

I can't stress highly enough how much you need to check out your Thyroid, is it very common to develop this disease if you have Hughes Syndrome/APS. Also the tests for it are not very good, please also read up on the symptom list, you need to find some ooomph to get your GP to test you and help you. MaryF

This is for Hypothyroidisim: thyroiduk.org.uk/tuk/about_...

and this is for Hyperthyroidism thyroiduk.org.uk/tuk/about_...

Many of our members join their patient forum on this same platform

You may also like...

At last a proper referral

Referral

ago and I have been fine on it but after reading that people who have had a stroke and have a INR...

Referrals!

waiting again, its been 10 years now. We dont have a specialist in Northants to deal with APS, ITP...

GP refused to make referral

recommended I have blood tests instead of seeing one of the specialists at St Thomas's. Does anyone...

Referral recommendations - Guys, UCLH or John Radcliff

Hi All, After a bunch of symptoms that have had me going back and forth to my local doctors, the GP...