Hello everyone, as you may know from my posts, I have APS and have struggled with many challenges such as PE, DVT and other challenges that come with Hughes. I am preparing to go to the Hughes Specialist in Portland Oregon next month and I wonder of a few things if I may find anyone that may have had this common struggle...
Five years ago I was sent into the ER with massive pain in my liver area, turns out I had an unknown mass and lesion in my liver. I have never abused my body in anyway therefore there was no reason for the mass, the five reasons they said would do this, I was tested for and nothing was positive so they sent me home with some of the most intense pain I've had. I had no insurance at that time and the second round of scans a few weeks later showed the mass was gone. I believe God can heal and I pray this happened. The struggle is I wonder is this related to Hughes? Liver mass? I was not diagnosed with Hughes then as I did not have insurance so they did as little as possible to help. In and out!
For the last few months I have had the same beginning pounding in the same area, I will not forget the pain, it is not intense enough yet but it is there for sure and wonder very seriously if this is a common thing with Hughes? Anyone experience this? It is so sensitive and piercing some times, I even put my hand on the area cause it causes me to coddle it. They literally said there was an unknown mass, could this be a blood clot and now maybe re appearing? Has this happened to anyone??
Hope someone has a common thread here?
Blessings to all