I was diagnosed with APS about 20 years ago and have been on Warfarin for 25 years now. I have had a problem with my feet for over 2 years now. It hurts when I walk and they keep swelling if I spend too much time on them. It was originally diagnosed as CRPS but this has now been discounted. I have seen 3 orthopaedic and 1 rheumatology doctors and none of them can determine what is wrong. I've had an MRI scan which showed lots of oedema and countless blood tests which came back normal. My GP won't refer me to Dr Hughes clinic at St Thomas's Hospital in London so I am at a loss. Now to make matters worse I have suddenly gone deaf in my left ear about 18 weeks ago and nobody seems bothered about this either nor determine why this happened. I feel totally disillusioned with the NHS and wondered if anyone else has suffered with any of these problems. Also my INR has been going up and down like crazy for a few months now and they don't seem able to control it. I wonder if this could be something to do with it? As I say I'm at a loss.
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