I was blessed 3 weeks ago with a healthy baby girl after years of heartache due to undiagnosed Hughes. I was on aspirin and heparin in pregnancy. I've seen a consultant haemotologist who says all my tests were negative apart from the DRVVT - the more sensitive one for lupus antibody. He says that as I've never had a thrombosis or symptoms of the disease outside of pregnancy I don't need treatment in every day life. Has anyone else had this advice?
He says that I'm not really at risk of thrombosis anymore than anyone else. Just enough antibody to be a problem in pregnancy. I stop the heparin in 3 weeks (6 weeks post pregnancy) and I'm nervous about clots etc. I guess I need to follow the experts advice. The consultant obstetrician specialising in APS also said similar.