Hi all -
I have been doing quite a bit of research on APS recently.
After suffering a partial occlusion of a vein in my head, they ran a ton of bloodwork. Everything came back normal - excluding that of the B2 glycoprotein IgM which was slightly elevated. They attributed birth control, dehydration, ear infection, sinus infection and this slightly elevated level.
I follow up with a hematologist 12 weeks later and my IgM is still slightly elevated. He tells me that I have APS, that I should order the positive options for APS book and then follow up with him in 6 months.
This website is referenced in the book. I join and start hearing all of these stories, which makes me try to figure out the disconnect between me and my doctor - because I feel fine, but am being told to stay on Coumadin for the rest of my life.
Again - everything - including IgG and Lupus anticoagulants are normal/negative.
I found a website that is now referencing the Global APS Score and I am wondering if anyone has ever encountered this with a doctor.
Given my age - 30, lack of any other elevated blood levels, partial occlusion with no brain scarring and no other symptoms, makes me question if it makes sense to stay on Coumadin for a year, then switch to a full strength aspirin, plenty of fish oil/natural blood thinners, and meds for my allergies...
Any thoughts are appreciated.