On the BBC News Today

[MaryF]

bbc.co.uk/news/health-27222450

MaryF

[Lure2]

What an OCCATION for the public to learn more about APS/Hughes. Now I wish I was English again so I could answer those questions.

Thank you Mary again!! Kerstin

[MaryF Administrator in reply to Lure2]

I sent the programme makers the link to the charity website for Hughes Syndrome Foundation and also the film of Professor Hughes talking about the condition, hopefully they will follow it up. MaryF

[Lure2 in reply to MaryF]

I am probably becoming half-English very soon. But we have APS in common no question abaout that. Thank you! Kerstin

[MaryF Administrator in reply to Lure2]

Yes! MaryF x

[Hidden]

Yup, as always - excellent one from Mary..x

[MaryF Administrator in reply to Hidden]

Thanks. MaryF

[bernieembleton]

Thats good Mary. I contacted them too. Bernie

[MaryF Administrator in reply to bernieembleton]

Good! MaryF

[daisyd]

Thank you. I will look up the comment area on BBC web site later and post a comment on there, perhaps a lot of us could.

It might help

[Lure2 in reply to daisyd]

Good Daisyd! Kerstin.

[MaryF Administrator in reply to daisyd]

Well done. MaryF

[daisyd]

Well finally found the place to write to. BBC News have your say.

[e-mail]

I also suggested they look at Hughes syndrome foundation web site

Lovely if it makes a difference

[MaryF Administrator in reply to daisyd]

Thank you, I did mine very early in the morning yesterday.. hopefully they will take a look. MaryF

[Suzypawz]

We'll done Mary! x