So, after being unwell for 10 years,diagnosed for 7 and having merry go round of different Drs. disagreeing with diagnosis and getting it re-instated and all the various trials and tribulations that it seems are all too common, I emailed the professors secretary two weeks ago to say that as he had discharged me (again) and that I had forgotten to get my "list" out of my handbag,would he mind addressing a couple of questions for me and I also asked if I might try plaquenil (again)
I have read on here that it is perfectly ok to do this and that we sometimes have to fight for treatments/referrals etc.
Anyway, after being told at the Drs yesterday that yes, the egg on my ankle was inflammation and that my blood had on occasion shown inflammation (when I am always being told that all my bloods are "normal") I came home and high as a kite on codeine ( I am very sensitive to medication) I emailed again.
I am now worried that I may have ruffled feathers, a fear of mine ever since 2007 when I was newly diagnosed and I was in a position where I had to badger the gp as the prof was waiting for copies of my endoscopies before deciding on what thinners to use and the letter got lost and I had had a nasty TIA in the meantime and I was begging the DR to contact the prof but they refused,as they had not received the letter ,and my badgering resulted in my being struck off.