Ive read on this site that many of you are on plaquenil and as i have problems with tierdness brain fog etc I thought i would ask my gp about it. Anyway ive seen him this morning and he looked it up in his 'drug bible' and because it didnt list APLS specifically he wouldnt prescribe it but did refer me to his collegue whos specialist area is rheumatology and i am seeing her on friday. What i wanted to know was is there anything i can print off to show her about APLS and Plaquenil as im really hoping she will let me give it a try. Thanks
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margaretjo
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Plaquenil also known as Hydroxychloroquine - OK - I have APS (Hughes) and although I do not test positive for Lupus I do have some sypmtoms, ie. Extreme fatigue, brain fog, rash, cramps - so the APS clinic at St Guys hospital have tried me on Plaquenil. Now If you do a search on our webiste there are a few blogs/questions, however I did manage to find this post from Paddy sometime ago and think if you print it off it may help.
Anyhow, hope your doctor comes round, it seems such a shame that time and time again we have to educate our doctors about our condition rather than them thinking hmmm I have a patient with a condition I know little about I will research it in case they need my help and support - doh how easy would that make our life, in fact I may just add that little line as a blog today.
But for you Jumping, I really hope this info helps and and you have a good day
Smiles to you
Lesley
I am on Aspirin and Plaqueneil. I do very well on them. My doctor gave me something from:
on the drug. I also have all the symptoms for Lupus, but do not test positive. Only test positive for APS. It has done wonders for me. Hope this helps.
LInda
**EDITED BY ADMIN**
I have removed the dead link and replaced it with the live one. x
• in reply to
The link did not take. go to the site and search for Hydroxychloroquine and click on the information for patients link. You can print it out for your doctor.
Hi guys,
Might be best to copy and paste the link (without the speech marks) for now.
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