Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for May 2013

Blood Transfusions & APS

Anyone had one? What is the protocol with keeping you coagulated etc.. anyone know?

Anyone had one? What is the protocol with keeping you coagulated etc.. anyone kn...

AnnieAxVale

•11 years ago

6 Replies

THANK YOU! re School vouchers

I have had great post from people posting either to me or my local hospital, those school vouchers often offered at checkout. Currently it is Sainsbury...

I have had great post from people posting either to me or my local hospital, t...

MaryF

Administrator•11 years ago

1 Reply

INR Race with Lissy Lou.

Ok let's see how we do, Lissy Lou! We may be surprised at what we learn! LOL 5-21 went for labs, forgot about reading blogs, after getting a citation from a...

Ok let's see how we do, Lissy Lou! We may be surprised at what we learn! LOL 5...

tchance11

•11 years ago

5 Replies

Want to take advantage of all our features? Just log in!

READ THIS - MORE EASILY!

READ THIS - MORE EASILY! Following my blog - first posted about four days ago, 'If You Find Difficulty Reading - READ THIS!',...

READ THIS - MORE EASILY! Following my blog - first posted about four days...

laserlight

•11 years ago

2 Replies

My APS

I have a weakness down my left side, I try not use my stick when I am at home, but use it at work as I stand up. Head pain is so painful at points that I...

I have a weakness down my left side, I try not use my stick when I am at home, b...

KarenOR

•11 years ago

4 Replies

Hi, I want to make an appointment to see Dr hughes. This may sound daft, but how did everyone else get to see him?

Did you go through your GPs or is there somewhere you can book directly? Any websites? I had a quick look through the questions, couldn't see it listed...

Did you go through your GPs or is there somewhere you can book directly? Any web...

bets

•11 years ago

6 Replies

my irn to day is 8 how long take go down and what best food to eat

dawn46

•11 years ago

18 Replies

Anyone have trouble with iron saturation or low potassium?

Ilovemyfamily

•11 years ago

6 Replies

Realising your Potential - taking control of your illness?

Hi Last night I went to a class called "Realising your Potential" It was run by School of Life in London ( www.theschooloflife.com ) and run by a chap...

Hi Last night I went to a class called "Realising your Potential" It was...

Hidden

•11 years ago

12 Replies

Jet!

Hi all Our Jet needs his friends, send him some hugs, he's having a real tough time right now!! Can't say too much about why, it's not my place! Keep...

Hi all Our Jet needs his friends, send him some hugs, he's having a real tough ...

jessielou

•11 years ago

12 Replies

Rehmatology appointment today

I have an appointment finally this morning. I hope I get some help after being passed here there and everywhere. Will keep you updated :))

I have an appointment finally this morning. I hope I get some help after being p...

Charli84

•11 years ago

7 Replies

Travel insurance. Travelling from the UK to Italy.

Can anyone recommend anyone please?

Hilda_G

•11 years ago

6 Replies

Hot off the press: Hopefully regarding DISABILITY benefits, the whole lot will be looked at now!

http://mind.org.uk/news/show/8895_victory_for_welfare_campaigners_as_judges_rule_controversial_disability_benefits_procedure_is_unfair?utm_source=twitter&utm_me

http://mind.org.uk/news/show/8895_victory_for_welfare_campaigners_as_judges_rule...

MaryF

Administrator•11 years ago

4 Replies

APS and Troublesome Symptoms

Does anyone know why some people have less symptoms than others? It seems as though some people have tons of symptoms like I do (neuropathy, joint pain,...

Does anyone know why some people have less symptoms than others? It seems as th...

momtomany

•11 years ago

4 Replies

new symptoms

ever since getting back from A&E the other week where they put my dizzyness down to dehydration ( I am not convinced) I have had like a tingling or twitching...

ever since getting back from A&E the other week where they put my dizzyness down...

donnabrain

•11 years ago

1 Reply

New here and have a couple questions. Thanks!

Hello I am new here I was directed here from people on thyroid uk forum. I have an under active thyroid and have been having episodes of left side weakness/...

Hello I am new here I was directed here from people on thyroid uk forum. I ha...

CarolineAnne

•11 years ago

8 Replies

i have had spa since 2007

i got told in 2007 that i have aps and possitve for lupus antigoacilation since then i have been on treatment but last week got addmitted to hospital to be...

i got told in 2007 that i have aps and possitve for lupus antigoacilation since...

loulou123

•11 years ago

7 Replies

Bruising of Fingers

Hi , I wonder if anyone could help ? I have Lupus SLE & Fibromyalgia . For the last few years I have had burning fingers which has progressed to affecting my...

Hi , I wonder if anyone could help ? I have Lupus SLE & Fibromyalgia . For the l...

Loopy-loo

•11 years ago

10 Replies

Sign the E-petition to get free prescriptions for people on long term anticoagulation therapy.

Hi everyone, this is well worth signing xxx http://epetitions.direct.gov.uk/petitions/46432

Hi everyone, this is well worth signing xxx http://epetitions.direct.gov.uk/p...

InSpain

•11 years ago

13 Replies

'Growing Pains' in arms and legs

I have got really bad aching pain in my arms and legs/knees, I can only describe them as being like growing pains. Is this related to aps, does anyone else get...

I have got really bad aching pain in my arms and legs/knees, I can only describe...

PepperT

•11 years ago

5 Replies

Translating concerns into action

For some time I've been concerned about the rather casual response I get following a low (out of therapeutic range) INR result. A minor tweak of warfarin dose...

For some time I've been concerned about the rather casual response I get followi...

ratbert

•11 years ago

6 Replies

Blood tests

Hi, My rheumy sent me a letter about recent blood tests. She said that it had shown up something that causes APS and Raynards. But I can't find a particular...

Hi, My rheumy sent me a letter about recent blood tests. She said that it had...

rosiemay

•11 years ago

4 Replies

Should I expect this from Clexane Trial (APS)?

I'll try to keep this short but, I'm a little stunned by my whole experience I feel I may have to pinch myself to see if it's real. I've been put on a...

I'll try to keep this short but, I'm a little stunned by my whole experience I f...

medsoph

•11 years ago

5 Replies

A cautionary tale re NHS failings and ladies after menopause

I realise what I am about to discuss can effect men and ladies under menopause too but more commonly after menopause. I have a relative aged 66, otherwise...

I realise what I am about to discuss can effect men and ladies under menopause t...

Jade

•11 years ago

2 Replies

Common denominator and symptoms

Good Afternoon, I am still under the impression that part of the problem people have in modern life is we don't fully understand what the long term...

Good Afternoon, I am still under the impression that part of the problem ...

DanMorris

•11 years ago

4 Replies

Patient Day transcript saviour

Thanks to an especially kind private donor, we are now able to get the recording of the Patients' Day transcribed :) The next challenge will be to get the...

Thanks to an especially kind private donor, we are now able to get the recording...

Hidden

•11 years ago

11 Replies

Problems with haemostasis?

Hi everyone. Has anyone had problems with haemostasis which have caused micro clots throughout the body, dangerously low levels of platelets and a very...

Hi everyone. Has anyone had problems with haemostasis which have caused micro c...

InSpain

•11 years ago

2 Replies

Primary Hughes but what about the lupus factor?

Hi there I have primary hughes....they are monitoring for the lupus factor....but does the Lupus factor just appear or under what circumstances might it...

Hi there I have primary hughes....they are monitoring for the lupus factor......

Sarita

•11 years ago

5 Replies

Your solution needed please.

Would anyone share their home remedy or prescription/OTC that really helped get rid of or lessen the pain of these pesky mouth sores?? Thank you, Kat

Would anyone share their home remedy or prescription/OTC that really helped get ...

Kathy829

•11 years ago

10 Replies

Just showing off!

Hi All At the weekend I won my first dressage competition in 3 years!!! I am so excited... ridiculous really considering it was just a local thing but...

Hi All At the weekend I won my first dressage competition in 3 years!!! ...

Hidden

•11 years ago

23 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for May 2013

Blood Transfusions & APS

THANK YOU! re School vouchers

INR Race with Lissy Lou.

READ THIS - MORE EASILY!

My APS

Hi, I want to make an appointment to see Dr hughes. This may sound daft, but how did everyone else get to see him?

my irn to day is 8 how long take go down and what best food to eat

Anyone have trouble with iron saturation or low potassium?

Realising your Potential - taking control of your illness?

Jet!

Rehmatology appointment today

Travel insurance. Travelling from the UK to Italy.

Hot off the press: Hopefully regarding DISABILITY benefits, the whole lot will be looked at now!

APS and Troublesome Symptoms

new symptoms

New here and have a couple questions. Thanks!

i have had spa since 2007

Bruising of Fingers

Sign the E-petition to get free prescriptions for people on long term anticoagulation therapy.

'Growing Pains' in arms and legs

Translating concerns into action

Blood tests

Should I expect this from Clexane Trial (APS)?

A cautionary tale re NHS failings and ladies after menopause

Common denominator and symptoms

Patient Day transcript saviour

Problems with haemostasis?

Primary Hughes but what about the lupus factor?

Your solution needed please.

Just showing off!

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