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Hughes Syndrome APS Forum

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i have had spa since 2007

loulou123 profile image
7 Replies

i got told in 2007 that i have aps and possitve for lupus antigoacilation since then i have been on treatment but last week got addmitted to hospital to be told i have got yet another blood clot all i want is for them to stop any one else the same

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loulou123 profile image
loulou123
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7 Replies
daisyd profile image
daisyd

Hi, what anticoagulant are you on ? Warfarin, what is your target range, do you see a haematologist regularly, clinic etc or rheumatologist who deals with patients who have APS

Hope things improve for you soon.

loulou123 profile image
loulou123

im on an injection daily yes i see a dcotor at the hospital regular but i still keep getting these clots

Manofmendip profile image
Manofmendip

Hi Loulou.

What injection and dose do you take daily? I take Fragmin 15,000IU, which is the correct dose for my weight.

What type of Dr do you see at the hospital?

Best wishes.

Dave

loulou123 profile image
loulou123

im on funerparexine 7.5 for my bady wieght and i see a hemotligist every three weeks he got told i have yet another clot in my leg

daisyd profile image
daisyd

Hi I had been on those injections in the past. If you are not due for an appointment at the haematology soon, I would phone your consultant via his secretary, to make sure that he is aware.

loulou123 profile image
loulou123

i feel though im fighting a looseing battle with the hospital dispite the treatment im still going on to get new clots always in pain and so so tierd all the time help someone im not copeing very well at all

I'm sorry you ares so ill Loulou,

Just to wish you get well wishes and all the best for the future. I hope they can stop your blood clots. They (specialists) only ever say, even on warfarin that they cannot stop the clots but it may help. Have you thought about asking for a different anticoagulant or are you allergic to them?

Take good care of yourself!

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