I'll try to keep this short but, I'm a little stunned by my whole experience I feel I may have to pinch myself to see if it's real.
I've been put on a Clexane trial - 0.6 injections + 75mg asprin per day (S-APS). I don't find the injections that painful and the bruising is a very insignificant price to pay for hope.
The first couple of days were like I had new limbs, everything felt different. My symptoms had already started to improve after such a short space of time, is this normal? I could think and coordinate better. I had these strange travelling pains, deep in my skin.. it started in my elbow, then it was in my leg, then knee. All I can describe the pain as is I once had a very painful injection deep into my wrist, it felt similar to that. Those have gone now however I do get the occasional small (2mm) lump in my knee which then turns to a bruise and goes away - I've only seen this happen before when I was thrombolysed last year. If I stand for long I get some small bruises in my knees too but that's really not a worry. The 3rd day I got a horrible headache that lasted all day.. then went away and came back a few times but since then it's not been a problem. My tinnitus has changed sound, it's there all the time but it's quieter. My legs hurt less, less electic shocks, less muscle spasm. My facial rash has improved significantly. I still get a couple of small blister-like craters appear but before they really burned and stung. I'm on the third week now and I'm able to be more active during the day and actually do things without bringing on an attack. I have Reynauds also, so the cold days have been much more unpleasant, but not as bad as they were. My leg circulation is seemingly improved too, there is hair starting to grow again where it had stopped (sounds yuck I know). I almost cried the other night because I did a whole day of general house stuff and.. I managed it! Sounds so stupid but it means there is hope of a life.. and job and future! Other things have improved also, my abdominal pain and digestion for a start. All my other general symptoms from the conditions I have just seem 'lighter' but more defined.
Basically I wondered if this is 'normal'? I have this slight fear that the Dr's that have been trying to convince me I'm mad are right and the syringes are just filled with water.
Oh, one more thing, the tingling/static sensation across my nose has not improved at all however, I'm not sure if this is related in any way.
Thank you for reading this <3