Where shall I start? (at the beginning)
It has been two weeks and I am STILL not sleeping properly.
Not sleeping until 4 or 5am and waking at 1pm
Maybe I am still suffering from jet-lag. I've been away for a month with my daughter who has just finished 3 years away at university.
Over 30 years ago I was diagnosed with endometriosis, 25 years ago I suffered 3 miscarriages and I put that down to bad luck.
I then went on to have my daughter by IVF. (thank you Prof Winston and team) After another 2 miscarriages and the endometriosis getting worse I made a decision to have a complete total abdominal hysterectomy (I did egg donation first though being only 27 my eggs were still good! Why waste them!)
That's when it all started.
Two great days after the operation I developed a P.E. One week after my discharged on warfarin I developed a DVT in my left leg.
Another week in hospital, discharged on warfarin.
Two weeks at home another DVT right leg discharged on warfarin
One month at home DVT left leg followed by Compartment Syndrome (due to a blood gas) and three months in hospitial. Discharged on warfarin.
Warfarin levels up and down hardly stable.
So between my Hematology Prof, Prof Hughes I was diagnosed with Lupus and Hughes Syndrome in 1999. Rheumatoid Arthritis by Beverly Hunt 2010
Since then I suffer and still do from Angina, Severe Asthma, Epilepsy, High Blood Pressure,High Cholesterol, Rheumatoid Arthritis, Depression and managed to have a Coronary embolism for good measure.
I am currently taking 28 tablets a day not including my 4 asthma pumps and clexene (since I am now warfarin resistance) and just for luck I am currently on
antibiotics and steroids as I am not well!!!!!!!!!!!!!!!!
I REALLY THINK I NEED ANOTHER HOLIDAY TO GET OVER COMING BACK HOME FROM HOLIDAY (EXCEPT I MUST LISTEN TO MY DAUGHTER AND USE MY FACTOR 50 AND WEAR MY LOVELY BROAD RIMMED HAT AS I CAUGHT THE SUN ONE DAY AND NOW MY FACE HAS FLARED UP. I HAD TO ASK HER WHO IS THE ADULT IN THIS RELATIONSHIP AND SHE REPLIED WE BOTH ARE NOW SHE IS 21.