Thank you all for your support and advice. I regret I wasn't strong enough to take it. I am outraged at my Hemo but maybe I am just looking for someone to blame.
After I found out I was pregnant I was given an early appointment to see a hematologist. I was about 6 or 7 weeks pregnant. I was shocked to hear his verdict. He felt that the blood clots in my lungs in my early 20's were provoked and the APS positive blood work results were coincidental. None of my other symptoms are related blah blah blah I think its all in your head. He said I don't need to be on Heparin and told me to stop taking it. He took blood so he could run the tests again in his lab. I only had a couple injections left and when I ran out of heparin all 3 of my Dr's overseeing my pregnancy stood together. Both my GP and OB said the Hemo was knowledgeable and trusted his advice. I told them how I felt and what I thought. I said I hope he is right.
I went for my first ultrasound, only to find out that I am not 10 weeks pregnant. I had a missed miscarriage. The baby had no heartbeat and had stopped developing during the 7th week of pregnancy. That's right after I discontinued my heparin. The OB that gave me the news felt it may have been preventable, in the future I should probably be on Heparin. Today I saw my own OB, she said that there is nothing that could have been done to prevent this. Since it happened in the first trimester it falls under the "Normal Miscarriage" category and it is the outcome of about 20 % of all pregnancies. She felt taking heparin would not have prevented this. I want to know what my GP and Hemo will think about this if it will change his opinion in any way. Will he say this is just another coincidence? My blood has tested positive twice for APS, I am waiting for the results of the 3rd test.
I am crushed and in a lot of pain, both physically and emotionally but I'm not sure what hurts more. I am stuck in this pregnancy purgatory until tomorrow when I have a D&C.
She told me APS causes late pregnancy loss. If it was at 16 weeks or 20 something it would be considered possible that it was an APS related MC.
Unfortunately many of you have been through this. There is nothing that can be said or done to make it better. Only time will heal.
How much more do I have to go through to be treated for Hughes Syndrome? Will they do my autopsy and suddenly discover I have APS?