So I have written to my consultant asking him to consider whether I have Hughes syndrome, as I appear to fit the bill in terms of the symptoms / test results and am on long-term treatment for high blood pressure and multiple PEs which have left me with severe chest pain. My consultant concluded lupus anticoagulant blood disorder and put me on warfarin lifelong as a preventative measure, this has been the case for over a year so why do I still have a pain in my chest? I had pre eclampsia in October 2010 which seemed to cause everything else to go downhill and I still have a swollen right leg after all this time, so I'm not convinced yet that I am no longer a walking timebomb. I am hoping my consultant diagnoses Hughes syndrome partly as having a named condition will help my psychologically. Does this make me sound mad?!
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