Hi All
I know a lot of our charity's members are already media volunteers - thank you to our 120 brave people
We will be launching a new website this autumn and will be featuring a case of the month including a picture of the person.
I just wanted to give you the opportunity to become a media volunteer if it appeals to you.
Please contact me on kate.hindle@hughes-syndrome.org if you would like me to send you the questionnaire.
I'm afraid this only applies to people in the UK - no offence to anyone overseas but journalists here only want case studies from the UK - sorry!
Thanks,
Kate