Having had virtually all the symptoms for APS and with nightly injections of Heparin relieving the symptoms you would have thought that I would have been diagnosed with APS by the experts! But no. My anti-cardiolipin test came back at 35 which is 31 over the limit for a positive, however because this was done at my local hospital it was not acceptable for the experts. I see that the test has now been changed anyway. Having had no positive for APS my haematologist was trying to remove the one medication that relieved the symptoms and obviously was working.
My GP realised that I almost certainly had APS and told me so but he was leaving the practice one week later so the only sensible doctor was moving to Canada from the UK where I live.
With my life under threat having had a heart attack earlier in that year I decided I must do something myself I thought “the bottom line is the buck stops with me as far as my health is concerned”
I come from a highly technical background so medical jargon is easy for me.
The technical jargon I was used to was much more advanced anyway.
I have been using the Internet from the 70s so I have a head start on most non tech people.
I researched the subject for six months solidly. I was spurred on by the docs trying to remove my Heparin lifeline 3 days before Christmas.
My wife has secondary progressive MS and I am her carer so life is not easy.
I even phoned the police to find out if they could really remove my lifeline and let me die and the police said it was up to my doctors if I died or not. Great! When the chips are down it is surprising what you find out. I wrote a letter to the chief executive of my health trust and got an immediate u turn in a phone call being told of course I could continue with my medication.
I decided I needed to be independent.
By chance I had ordered a product containing serrapeptase and nattokinase to treat my Peyronie's which had been triggered to maximum damage by the Bisoprolol beta blockers they had given me (Peyronie's is a listed side effect of bisoprolol if you look it up on the internet but conveniently for the manufacturers not on the piece of paper included with the pills)
I read on the pot that the product must not be taken with either heparin or warfarin. This turned out to be because the product was a blood thinner in its own right.
I took a gamble and swapped from heparin to the serrapeptase and nattokinase.
"Bingo" it worked and I could tell it worked better than heparin because I was in the habit of measuring my blood sugar every day thinking previously I had diabetes and in pricking my finger I could tell that the blood was a much brighter red and flowed more freely.
I was not symptom free but this treatment was much better than the heparin.
I was taking 9 capsules a day which was costing me 80 pounds a month but anyone who knows me would know that I do not spend money lightly. I save money at every available opportunity. Being threatened with death was a good reason to spend this kind of money. There are other products on the market and I could let anyone who wants to know what these are.
I still get zig zags, occasional sinus problems for a day, occasional dizziness, the odd whistle in the ears and erratic heart rate sometimes and cold legs.
However I now live a very normal life with little discomfort.
I can play golf three times a week and yes I do get a bit puffed out sometimes but the treatment I am on makes exercise possible.
Since my heart attack I have to take it steady and do have a few dodgy moments but I hit the ball a very long way for my age.
Before if I exercised I would only get worse and end up in the hospital with erratic heart problems and my legs were sore and breaking out in veins and burst blood vessels.
My Chronic Fatigue has gone completely from the moment I started my treatment as has my sore hip and knee and chronic ear problems and strangely so has my hiatus hernia. The Glucosamine and cod liver oil seem to have relieved my very stiff and chronic back problems as well as relieving my swollen knuckle joints.
This is what I now take having scaled back the treatment after 20 months.
1)3 Neprinol AFD with water 30 minutes before breakfast (porridge oats)
2)1 Heal n Soothe taken with the Neprinol
3)1 Glucosamine Sulphate (1000mg) with breakfast
4)1 Cod liver oil with breakfast
5)1 Glucosamine Sulphate (1000mg) with lunch
6)4ml of Active Circulation formula every other night with diluted fruit juice
7)1 glass of sweet white wine 3 hours before bed diluted with fruit juice and water every 4th day never the same night as the Active Circulation Formula
There is another product with serrapeptase and nattokinase called Serracore NK.
I always separate the blood thinners from each other by 10 hours at least.
So I do not take alcohol with the neprinol or the active circulation formula.
And I do not take aspirin or any other blood thinning meds like warfarin or heparin any more.
I hope my experiences help.