Antiphospholipid Syndrome or Sneddon Syndrome

[Andy_A]

While doing some research on APS I've come across another condition called Sneddon Syndrome, the symptoms appear to be the same, treatment appears to be the same (increasing the patients INR) and antiphopholipid antibodies are found in Sneddon patients, so my question is are they the same thing?

Im probably missing something here, but to me if it looks like a duck, walks like a duck and quacks like a duck then its a duck...

[jetjetjet]

i did a little reading on this , iguess at one time it was considered an auto immune disorder, but now considered a cerebrovascular diease, some and some dont test possitive for a.p.s. . got info from gooogle. take a look jet

[daisyd]

Their is a Sneddons web site where you can get loads of infomation.

unfortunately is closed at the moment for discussion.

Despirate to talk to someone else who suffered from the same condition I went on

NORD Rare Disease Support Community National Organization for Rare Disorders

There had been a discussion that I picked up on, I am now talking, from memory which is not good about 6 people with it

I have Hughes syndrome their is not test for sneddons? maybe skin biopsy to test for it.

The consultant went on my symptoms memory problems and rash,

I think the symptoms are similar to cerebral APS.

Good luck

Karen xx

Treatment warfarin

[Storky]

Here is the wikipedia link:

en.wikipedia.org/wiki/Snedd...

It says that it was formally thought to be a variety of APS. One wonders how many varieties there are???? Sounds like an ice-cream!!!

[lovemyheart]

i was told i have sneddons. it is when u have the lacy looking pattern on your hands or legs (which is also known as livedo reticularis). what is cerebral aps?

[Andy_A]

Hi all, and thanks for the replies,

Looking at the two side by side it appears that they are in some way related, or that Sneddons could be a subset of symptoms that go with APS, although its classification as a cerebrovascular disease throws that theory, but then if yu look at stroke, DVT and many of the other symptoms of APS they could be classed in the same way...

Either way I'm no expert, but I seem to find something new out each day at the moment, I'd rather not need to know any of it to be honest, but it looks like its going to be a steep learning curve...

[jessielou]

Hi Andy

certainly is a lot to learn, plenty of us walking the path together, none of us experts just patients going through it together.

Aps has much in common with many disorders. For instance lupus the great imitator, sjorgens, thyroid problems, ms, and Fibro all have symptoms in common. Some of us have multiple diagnosis's (spelling doh??).

Hope you not feelin too bad today.

Take care gentle hugs sheena xxxxxxxzz

[LisaWA]

I was looking it up to. I think it is the same thing...Sneddons was discovered in America around 1965 and Hughes figured it out in about 1983 in England...

I am contacting a PH.D. here on a Sneddons Syndrome sight and getting her opinion..I will let you know what I hear back. Lisa in Washington State

[dawnbreak in reply to LisaWA]

alias, I was also given a diagnosis of sneddons syndrome. previously cadasil, test/negative. Marfans syndrome, test/negative. I knew I did not have either one. I am baffled dince this neurologist diagnosis he only has me on a baby asprin and hbpill. Do not have memory/cognitive issues. I am wondering if I have been mis diagnosed again. I insisted that he give me a lupus test and antiphosolipids. His e mail Lupus-negative, you probably do have antiphosolipids syndrome, end of conversation. I have livedo on my right arm, had a stroke 8 years ago.

[daisyd]

I think it is called cerebral Antiphospholipid Syndrome, because not all people who have APS/ Hughes syndrome have problems with their brain.

Lucky them i say

Love Karen xx.