APS AND HIGH BLOOD PRESSURE - Hughes Syndrome A...

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APS AND HIGH BLOOD PRESSURE

daisy11 profile image
7 Replies

Hello

Well for the last few days, I have had really bad headache which is throbbing and then goes into my ears, and lymp nodes, even bending causes pain. Alo my nose has been bleeding I tried to put up with it and today went and had INR and the nurse said how high my BP was 164 and she said see doctor which I did and I explained to her that I had headache, etc and she did my BP again and the same measurement as nurse, she prescribed me ith Atenol. I was scared because of having these nose bleeds which are quite long and she said that it is like a safety valve with blood pressure and because I have warfarin, and now this high blood pressure then I will have a nose bleed. As soon as I got home, I had the tablet and touch wood, first time in days that my head seems to be normal (well getting there) I was dreading going to GP because she is so thorough and she tends to send up to hospital and it takes ages. I even packed a small suitcase just in case.

Does anyone else have problems with high blood pressure?

Thank you

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daisy11
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7 Replies
Stannington-lad profile image
Stannington-lad

Hi daisy11.

Sorry that you have been unwell.

I have high blood pressure. Mine started when I gat these sharp pains in my head and ended up with APS. I used to have loads of nose bleeds for years and I know how you feel.

Hope all goes well.

daisy11 profile image
daisy11

Hi Thanks for replying. I have to go back tomorrow for a check up and whether to up the dose of high blood pressure tabs. Thankfully, the nosebleeds are less severe.

It is good to know that people have the understanding.

Herb profile image
Herb

I had very high blood pressure for many years, due initially to lupus nephritis and then I believe it was affected by my being on steroids (prednisolone) eventually after years on a low salt vegetarian diet and taking all the medicatiions they prescribed, atenolol and other BP meds, it went down to normal, has been for years, now it is even a little low at times.

I came off the BP meds after a number of years of normal readings. I also stopped smoking and drinking alcohol and I try to eat healthy, still avoid salt ad take moderate exercise as often as I can, also I meditate every day.

Make sure you get kidney function tests as the APLs can affect the kidneys: kidney and heart problems are often related to high BP no matter how healthy your lifestyle.

daisy11 profile image
daisy11

thank you for replying. my blood pressure is going down - still little niggles - headaches etc remaining on Atenolol. Just cannot believe that since March after having splenectomy, I am all over the place!!!

Ibfrostybrew profile image
Ibfrostybrew

I started gaining weight and getting high blood pressure in the Marine Corps at 22. My BP has gradually gotten worse over the years.

HollyHeski profile image
HollyHeskiAdministrator in reply to Ibfrostybrew

Hi, you've answered a very old post (7 years old), - if you have a question, try starting a new post. x

Lure2 profile image
Lure2 in reply to Ibfrostybrew

As HollyHeski suggested you should put a new fresh question on here and you get more answers. This old one is 7 years.

I know you are a man diagnosed newly for APS and are looking for a Specialist in Indiana and Michigan.

I can tell you that I have had very high bloodpressure from my APS and had to take a lot of bloodpressure-drugs but still had rather high bloodpressure.

With anticoagulation with Warfarin my bloodpressure went down to normal but i still have to take the drugs. Bloodpressure is sometimes a symptom of APS. We need to thin our blood!

So I wonder if you are now taking any anticoagulation-drugs? Have you recently seen a Specialist of autoimmun illnesses which is exstremely important for us to do?

Best wishes from Kerstin in Stockholm

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