I am not really sure how to put this without upsetting or offending anyone, but I am really concerned about the content of a blog/post recently written.
There are guidelines and rules for this forum and there are at least two rules broken in the blog.I found the rules earlier but for the life of me can I find them now? No !!
What concerns me more than anything really is the content and how it may alter the mindset of someone accessing this site, who is new to APS and is so desperate for answers or to feel better they may try anything.
Who moderates this forum? Who is in charge? Surely some content must be screened to a certain degree to protect its users/members?
Not everyone is (sp) offay with the internet and I feel that in the peoples search for answers, they are in a very vulnerable position here on the big wide web and often give over information without thinking, because perhaps they are so relieved to be here with other people who know how they feel that they forget and perhaps trust too quickly.
I am not saying that this is everyone, and perhaps its the minority of members and I do think some think along those lines.
Just remember that lots of different people access sites/forums like this for ulterior reasons and motives and not all are who they say they are. Journalists and even perhaps the DWP. I am not trying to scare you, but just to warn you to be careful. There is two choices when you do a blog. The everyone is recommended, however you can chose to only let HSF members see it. Sadly not everyone is a HSF member and we really do need as much input in seeking our answers as possible.
I am just concerned and my protective nature is to point this out to you all.
I personally get a feeling that one particular blog is not all what it seems but I am glad that most of you seem to have cottoned on to it too.
When we are first ill, strange symptoms, scary symptoms we are terrified and we feel so alone. Places like this should be a safe haven where we can relax and learn about what is happening to us, gain information through knowledge and the experience of the more *seasoned* suffers (sorry not the best word to use). But at the same time its down to us more *seasoned* of APS sufferers to protect the new and vulnerable too.. I know that myself, I will never forget how scared I was in the beginning and that is a very lonely place to be.
I am just concerned and I hope that I have not spoken too much out of turn