I havent posted much on the site but do read with interest posts from others.
I have Factor V Leiden and Protein S deficiency and have had numerous episodes of DVT and PE. All under control now, or atleast as much as possible.
My INR fluctuates and is difficult to manage and I have regular daily injections of heparin (on another course at the moment for the last 4 weeks and INR level not budging!)
What I would like to know is do other people get a lot of aches and pains - I dont just mean the odd ache - my leg and back constantly aches, the muscles inside hurt, my lower back aches even when I turn over in bed at night and walking sometimes is almost unbearable.
On occasions when driving my feet go numb (not a good thing!) and I have to press my foot really hard on the floor of the car to make it better. My hands are often very cold - to the point of being very painful... I have spoken to my doctor about the above but feel as if I am just moaning all the time.
I have a very busy work schedule and travel a great deal, need to feel on top of this as I am concerned it is beginning to affect my work and clearly my life otuside of work.
Any tips/suggestions would be greatly appreciated.