After a 5 day stay in hospital where everybody was wondering if i actually had APS or not, and not having access to my previous hospital's records I was discharged because of childcare issues and have had more bloods taken and today I go for the results. APS is all over my records that were sent from my GP, and on discharge a doctor finally agreed that was what was going on with me and said she'd make sure it was on the discharge summary. Ive been through the system so many times and im really worried that when i go to see my consultant today he's going to change his mind just because my anticardiolipin antibodies are hiding at the moment - im also really worried if theyve found something else too! Im really suffering at the mo with eye temple pain,cheek and left side numbness and like electricity pins and needles in my fingers. I am usually ok with these appts but today i just feel really sick with worry, scared if they dont find something and scared if they do! More worried that theyre going to go back on the decision to warfarinise me and im going to end up back around the appts without medication waiting for yet more tests!! Does anybody else get this streesed and frustrated with it all?? How do you handle it??
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