Can anyone tell me if APS is heredita... - Hughes Syndrome A...
Can anyone tell me if APS is hereditary. I was diagnosed and would like to know if my daughter could have it.
Hi there
At present there is no definitive proof that APS is hereditary. It has not been around for that long. However there are case studies that show that there can be certain clusters in families.
Be very wary of sending her for tests, because if they find something it will dog her for the rest of her life in terms of insurance and mortgage etc.
I speak from experience!! I would now only have my girls tested if they were pregnant or planning on a baby and had symptoms.
My daughter already has three children, its just that she gets severe headaches like me, gets very tired (although she would with 3 young children), its her that wants to find out.
Hi, I found out that my dad suffers with the same things that I do. I thought I would inherit is money not this. LOL
excellent, thanx lol
Hi sue
I find i'm having same dilemma myself, my 28 yr old daughter should be tested, her gp is willing on basis of history and symptoms she has, her choice tho. My 14 yr old has headaches, stomach problems so she probably should be tested, however will wait and see what tommies think. Also ultimately should be her decision.
My dad was told 20 odd yrs ago that he has sticky blood, he had a mini stroke about 4 months ago, he ok i hasten to add, dad's sis had 18 miscarriages so would seem a strong family connection!!!
Big question marks????
Hope you well today
take care gentle hugs sheena xxxxxx jessielou xxxx 
Thanks for that x
Hello, my daughter has APS - she is 16 year old and was diagnosed in 2000 when she developed ITP, Lupus like myself. She is on Aspirin. My Mother had APS, and also my youngest sister had ITP and Lupus. Our rheumatologist is brilliant not only is she an adult rheumatologist but a paediatric one and lucky that she is aware of our history and family.
My father had Haemolytic Anaemia which is part of the genetic make up and my daughter has had 5 miscarriages. Prof Hughes says it def is genetic. Also if you get someone who has Thyroid antibodies in the family it can also mean that that can be part of the genetic link too and it comes out as something like Sjogrens on someone else.
These genes.......pesky little creatures!!
Will pass all this info onto my daughter and she can make her own decision whether she wants to be tested. Thanks everyone.
I asked this question several years ago and I was told that I had 'Acquired' APS and not hereditary, and so the decision was made that my daughter should not be tested. However, I have always told her to inform Drs etc that I have it. I don't know how the haematologist could tell that it was acquired??
Trouble is, when you tell gp's etc that you have Hughes or APS, they say "what that", quite worrying really.
