Rapid Deterioration

[Darlingtonian]

My 73 year old husband was diagnosed with PSP in September 2023 after five years of having symptoms. He was originally diagnosed with old age and then Parkinson’s and then Parkinsonism and then Hydrocephalus. He’s deteriorated rapidly in the last twelve months. We’ve banked his voice although given his current presentation: confusion, not finding the right words, and memory loss, I don’t think he’ll be able to use his laptop. His mobility is poor and his legs often freeze. I kept thinking his brain has had a power cut and then it comes back on again. He also has bladder incontinence. Since he was diagnosed, much to the consultant’s delight, we’re getting very little support. I’m in regular contact with our local incontinence unit and only just received a call today after 8 weeks. My question is about how this horrible disease progresses. My husband was an academic, bright and alert, but he now struggles to talk, find the words, gets confused, angry, and is a shell of his former self.