Dropped Head: My husband is in an advanced... - PSP Association

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Dropped Head

Joanne19 profile image
2 Replies

My husband is in an advanced state of PSP and struggling on all fronts including mobility, vision, swallowing (now PEG fed) and communication. Recently, PSP has delivered another cruel blow in that his posture has slumped to one side and his head has dropped. Physiotherapy hasn’t made a difference, he can raise his head slightly but is unable to maintain this position, so I’m now looking at supportive devices to try to make him more comfortable. There seem to be a lot on the market so I was wondering if anyone has experience/ advice they could offer on types of support they found most useful. Any help would be gratefully received

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Joanne19
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LittleOllie profile image
LittleOllie

I'm not aware of any support for the head but my mom had plenty of cushions. She benefited greatly from a weekly body massage with her physiotherapist which helped with muscle tightness. I hope you find something suitable for your husband. PSP is devastating and it makes me so sad to hear about all of these people who are suffering.

Joanne19 profile image
Joanne19 in reply toLittleOllie

Body massage sounds like a good idea, thank you for your help

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