CHC funding review

[SunriseLegend]

My husband was awarded CHC funding on discharge from hospital in July. I've just had a phone call to say it is due for review - which I was expecting as I know it is reviewed after 3 months - and it will be telephone tomorrow evening so not much notice.

Does anyone out there have any experience of having a CHC funding review? Any information about what I should expect or any tips to share would be much appreciated

Thanks in advance

[Kelmisty]

They will be looking to see if anything has improved in terms of his health, make sure you explain how things are the same or have worsened.

And if you need more help/care for him.

[SunriseLegend in reply to Kelmisty]

Thankyou

[Millidog]

Hi, Generally a 3 month review is focused on checking the care /hours agreed is suitable and sufficient, not a detailed review or jutification of needs as you experienced at the assessment. Like you I was worried but found the experience positive...we had a visit. I had prepared some information on changes in the 3 months thinking we would need to justify again but on arrival the CHC contact stated she wasnt here to take the funding away but rather to see if care hours provided met needs. In discussing changes and current state she felt this actually highlighted increased need and I wasnt expecting but was given extra hours in the form of some nights hours focused on giving me a break. So dont worry too much - be prepared to say how the care provided is meeting needs and dont be afraid to express further needs if you feel you have any gaps. Dont under any circumstances say there is less need or medical conditions improved...any improvement is only likely due to increased care support eg less falls but only because carer with the person etc. I would suggest you do keep records going forward - daily diary, progressions and changes, details of any medical interventions as it is highly likely you will have a 12 month review (12mths after the 3 mth review) and that will be a more detailed discussion where you have to evidence continued or increased need. Good luck tomorrow xx

[SunriseLegend in reply to Millidog]

Thanks - that’s really helpful

[Bergenser in reply to Millidog]

Thank you, we are a couple of months behind, so really useful to get this context. We are still completing the full set of information to get the personal health budget signed off, but it's nearly there and we seem to be getting everything we need. A bit scary to see how soon the review is coming up. We just had to complete a "Continuous Observation Care Provision" observation record, so I'm prepared to do that again when needed. Good luck to SunriseLegend 🌻🤗

[SunriseLegend in reply to Bergenser]

Thanks - and good luck to you as well. It’s a lot of effort isn’t it getting your head round the system requirements Sometimes I wonder how sufferers who don’t have capable loved ones to advocate for them manage to navigate the system

[Tippyleaf]

Hi Sunrise

I agree with Millidog it was more of an informal check in that care was being provided at an acceptable level. But I had copies of hospital letters ready to show and had written a list of challenges at that time to ensure I had evidence to hand that the need was the same or greater in all areas. Prompt sheets like this gave me confidence that I wouldn’t be caught out not being able to reply.

Good luck

Tippy

[SunriseLegend in reply to Tippyleaf]

Thanks - yes I’ve just spent the morning preparing my list!

[Kelmisty]

How did it go?

[SunriseLegend in reply to Kelmisty]

Thanks for asking. 45 minute phone call covering all aspects of the CHC checklist. Outcome as I expected. On discharge from hospital the CHC was under the fastrack criteria (expected rapid deterioration and limited life expectancy) . That assessment is no longer applicable as his condition is relatively stable. Instead he now falls under the complex care needs criteria . He will have a full face to face reassessment in the next month - but no need for concern as the evidence I have provided so far indicates he has complex care needs . The different assessment category will mean that other health care services that we don’t already have access to will become available to us. Not exactly sure what that will mean but sounds positive.

Thanks again to everyone for coming up trumps with helpful advice at such short notice - this forum is amazing!!!!

[Kelmisty in reply to SunriseLegend]

Glad it went ok x