Advice re respite care - Chorley/Wigan area

[Vraic]

My husband (59) has mid-stage PSP ( diagnosed May 21, fully wheelchair bound and fairly severe speech/eating issues) We've been awarded some funding for respite care. Most care homes seem to specialise in old age and dementia care, which doesn't seem to be appropriate. Could anyone recommend a care home in the West Lancs/Greater Manchester area, or tell me what I should be looking for? Thanks in advance

[Millidog]

I'm not in you area and hope other can help. I understand your dilemma and wondered if you've considered a luve in carer from a care company for the respite week. I suppose that's only suitable if you're going to be away but it may be a solution to get the personalised care and support you need for your husband. We have chc funded care provision and for many reasons but also for the issue of care homes focusing more on the elderly we found care at home a much better solution. More intrusive of course for me but certainly better for my husband to be in his own home and to have 121 support. Bw

[Millidog in reply to Millidog]

Oops sorry it's should read live in not luve in .. that may be a very different type if care 😁

[Vraic in reply to Millidog]

Thank you - it did discuss it with the social worker , but apparently there are few (if any) providers in this area.

[Millidog in reply to Vraic]

I'm surprised if that's the case as it's such a large area. If you googlevcare companies it might give you an idea of what's available to be in a better position to discuss with SW. A good argument is that it likely to be cheaper for them than care home costs. Many care Co do provide live in care specifically fir respite xx

[Bergenser in reply to Vraic]

It depends what involvement you are happy to take on, the Curam platform can give you an idea of what individuals are available for live-in care in the area. The NHS won't pay for carers through Curam (because they act as a "broker", not a provider), but for a week of respite it might be simpler (and less expensive) than a home, and you are in control. No harm in browsing 🌻🏡

[Gnomelov]

Hello. Do you have a Marie Curie Hospice near you? In Newcastle, my husband is allowed 2 weeks respite care per year, funded by NHS. I know 2 weeks isn't much, but they are an absolute life saver to me x

[Vraic in reply to Gnomelov]

Thank you . I did have a look and I don't think we could get this - the only one near is Liverpool and via NHS referral; our route is via social services so I don't think we could get in.

[HowDoglover]

Hi , my 81 husband is at the same stage, he is in Burscough Manor Care Home, Burscough, the care for him is pretty good, VERY pricey,he was refused NHS funding, but we went ahead, just need to impress that it is PSP & not Parkinson’s.Good Luck

[Vraic in reply to HowDoglover]

Thank you for this - I've had a look at the fees - a bit less than some of the ones round here which are in the £1400 region. The issue seems to be my husband's age - he's only 59

[Kelmisty]

My Mum was reluctant to go to a care home as she only 71. But actually you need to look past the residents and look at the carers working there & the manager - the reality is how much socialising will he be able to do with them? Not much probably and it’s only for two weeks so unless there is a likelihood you want him to remain there it’s two weeks. Also surely he needs to go to a nursing home to cater for his needs?

[Kelmisty in reply to Kelmisty]

Oh and two weeks on for my Mum she’s settling and doesn’t think it’s that bad.

[Vraic in reply to Kelmisty]

Thanks for your advice - I'll look at nursing homes and take your point about it only being a couple of weeks