Awareness of PSP and CBD your contributions

[autex2000]

Further to my previous posting regarding awareness of PSP, and the large volume of positive feedback might I suggest the following to anyone interested in taking it further.

By the amount of sad and tragic stories about the lack of knowledge and suffering with PSP and CBD I think if anyone feels like bringing the content of them to people who may take it further. They should take a sample copy of five or six of the painful experiences sufferers and carers have had, package them up with their own experiences and forward them to their local MP. I feel sure that if sufficient people do that, at least one or two of the recipients will bring it up in the House of Commons, particularly if the odd letter and experiences also find there way into one or two of the national papers, and with a little bit of luck the knowledge and awareness of these terrible diseases may generate some effort to help. Particularly if you include a copy of the excellent leaflet " Red Flags " by the PSPA.

[daddyt]

Hopefully, a meaningful change to PSP-CBD awareness will come soon.

Tim

[timbowPSP]

Hello Autex, I reckon one instant prob is that those most in need of assist are the same as those most UNable to bellyache on their own behalf. We may need a dedicated group of legal stalwarts to do this 'middleman' brokering? A possibility but in need of funding! TimbowPSP

[LittleOllie]

It makes me sad and angry that there is not enough help out there for people with PSP and CBD, these people are dying in such a cruel and heartbreaking way. My mom passed in April and we tried to do everything we could to help her. These diseases need to be taught to students studying medicine, opthalmology, physiotherapy, dietician etc. Education and awareness is so important