Group - West Yorkshire ?

[Diggerandsam]

is there a group in/near Halifax, West Yorkshire? Anyone interested in starting one?

[David750]

Hi Diggerandsam, phone the PSP Association's Helpline, they will be able to help you with any local group meetings other than the online Zoom Groups - mixed or men only.

[Diggerandsam in reply to David750]

Thanks David. Unfortunately i can’t speak well, particularly on the phone. I’ll just wait for responses to my message on here

[David750 in reply to Diggerandsam]

Diggerandsam, I understand. Could you email the Helpline? Tell them where you are and the help you would like - [e-mail]. The Association has a growing number of Link Volunteers, each having cared for a loved one. If it would be suitable for you and one available in your area, you can get a series of visits. One of the continuing improvements in support the Association is endeavouring to provide. The website itself has great information now. All my very best wishes

[MullerRice in reply to Diggerandsam]

Hì Diggerandsam, I personally wouldn't worry about speaking to PSPA on the phone; I have found them to be informative and, aove all, understanding.. My own personal situation is that I both struggle to send emails and speak clearly, and I freutly get another person to do either for me. Is this an option for you?

[Diggerandsam in reply to MullerRice]

Thanks. I’ll look into this

[Diggerandsam]

okay, will do

[10tallulah52]

Hi

I'm from Halifax, its my sister who has PSP, she also lives locally. She was originally diagnosed in 2021 with Parkinson's but soon after this was changed to PSP. Unfortunately there isn't a support group that I know of in West Yorkshire, but we do get support from the local Parkinson's group and from Overgate Hospice. The PSP Association also provide information and advice and I've joined a couple of meetings via Zoom which are helpful. This group also has lots of info too. I'm happy to try and answer any questions if I can about what's available locally.

[Diggerandsam in reply to 10tallulah52]

Thanks for responding, Tallulah. I’m getting support from Overgate too. How did you get involved with the Parkinson’s group, and is it very useful? I’m pretty much housebound at the moment (hoping to get a wheelchair accessible vehicle soon) so am having complimentary therapy from overgate, and join their Wednesday morning Zoom meetings where we chat, sometimes do chair exercises, both of which I have difficulty with, but we do a quiz every week - which is the real reason I join every week!

[10tallulah52 in reply to Diggerandsam]

We were told about the Parkinson’s group by the Social Prescriber based at her GP’s as she was initially diagnosed with Parkinson’s not PSP, as many people are.

We have continued to go to some of their events and activities as it’s good to keep my sister motivated and also good for me as one of her carers, so there are people who understand to speak to. My sister is married and fortunately her husband works from home and is her main carer. Here is the link to the Halifax Branch.

parkinsonshalifax.org.uk

Perhaps we will meet at some point in the future.

Hope that helps.

[Diggerandsam in reply to 10tallulah52]

That’s great, thanks