My father was diagnosed with PSP in 2016 .. which was post a few backward falls .. I had noticed a few changes besides balance issues like not blinking for long .. I had myself diagnosed the PSP with Google search before the neurologist confirmed the same !
I understood that there was little one could do about the progression but what was in my hands was give the necessary support and care as the condition progressed . Besides the physical care that was needed , we would mentally engage with him with games and talks that he could make sense of . What a challenging 8 year journey it has been for him and us as a family. Last 3 plus years he was on peg tube formula milk feed as his ability to swallow diminished. Around 2.5 weeks we noticed abdominal distension and took him to the hospital. Medication didn’t make it better .. and the gastro informed that the gut isn’t able to process any more and the motility has been compromised. So was referred to palliative guidance. Now we have been home for a week and he’s getting only minimal water with gut medication. He’s in the last phase of life .. could be days or weeks . A very tough time and praying it’s a comfortable and peaceful transition for him . He’s taught us how love is the best medicine.
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Dravid100
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Prayers said for your dear father and family. I lost my Daddy to PSP as well and was his caregiver for the last 2 years. It might be the most difficult thing you ever do but also a most honorable one.
My wife assed away last November. PSP is a grinding and relentless disease. My wife showed immense courage even as she faced the end. We can only learn from the example of these courageous sufferers and bear our grief with love, respect and courage.
I had a similar experience with my Dad, he’d also had the disease for 8 or so years, he passed away last year.
It was peaceful and gentle in those last few weeks, he seemed to ‘lose’ the disease and looked more comfortable than he had done for a long time.
It was tough but I was glad to have been a part of his journey and he snuck out of this world when l wasn’t in the room but that’s the way he would’ve wanted to go, no fuss!
My dad has just passed on the 10th after fighting PSP for around 8 years also, passed from pneumonia 😢, I am keeping strong due to knowing he is know pain free and at peace.
Sending big hug’s through this hard time your family is facing 🤗
My sincere healing prayers 🙏 The thought that he’s free from his struggles and free is true. I keep reminding myself that dad is going to find peace . Tq for your support 🙏
So sorry to hear if your psp journey, I wish you strength for the days and weeks ahead. My husband also had it for 7 years ,though initially told PD . It is his Anniversary next week & can't believe it's been 3 years since his passing.
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My Dad's PSP Journey
Morphine
End stages of PSP
My father is now at peace from PSP
The end of my father's PSP journey.
