I'm new here and appreciate My husband has both PSP and Hydrocephalus. The hydro was diagnosed first, and he got a shunt in the fall of 2018, clearing up the symptoms almost right away (headaches, fuzzy thinking, incontinence, balance). Nine months later, I began noticing changes...first his gaze, then his big voice became a whisper, and he began to drool, incontinence came back. He was diagnosed with PSP in August 2019. On Dec 31, his shunt failed, causing his ventricular to expand to a dangerous level. He had two emergency brain surgeries in five days to fix the problem. He's now in a neuro-rehab facility. He can't walk on his own, can barely talk, and has experienced significant cognitive decline. I have neurosurgeons and neurologists at Brigham & Women and MGH scratching their heads, trying to figure out what's a result of the hydro/recovering from brain surgery and what's PSP.
Has anyone had experience dealing with both issues?