An introduction to PSP & CBD

[HelenPSPA]

The updated 'An introduction to PSP & CBD' information leaflet is now available!

The revised leaflet contains essential information, helping to answer some of your initial questions about the conditions and how PSPA can help. It is also smaller making it easier to fit into pockets and handbags as well as in GP and hospital displays.

If you would like a copy of the updated leaflet, please email us at [e-mail]

For more news, information and support, join PSPA here: pspassociation.org.uk/get-i...

[Boman]

Thanks for providing these invaluable resources. Recently I received my copy of another leaflet: “a guide to cognition in PSP & CBD” which equally provides clear and absorbable information. Countless times I have had to show the brochures to clinicians as they lack the time and often have generic knowledge. It helps with focus.

For my family, it provides answers. Something to cling onto.

For myself, acknowledgement. Reading I am not the only one going through this, getting a clearer picture, regardless of the not so good news ... Better. To be informed. And when at times, already hazy, I can feel like an imposter (yes, imposter syndrome), I get some validation.

— Bo

[HelenPSPA Administrator PSPA in reply to Boman]

Thanks for the positive feedback Bo.

We do have some resources aimed at healthcare professionals if you think it would be useful for the clinicians? One is an online resource - more info about that is available here: pspassociation.org.uk/news/...

[Boman in reply to HelenPSPA]

Thanks Helen. I already have them and can only recommend to all, carers and patients, to have them. I usually bring them with me to appointments. Often it has been an eye opening source of reliable facts and helped clinicians to understand. Of course, not all are receptive and dislike being “told”. But I can’t afford delays and misunderstandings. I always emphasise these resources are a good way to discuss treatment plans.

Managment of my symptoms is what matters most to me and my wife. With the new cognitive challenges I am hoping to see the consultant take action. I have an appointment with him tomorrow. Fingers crossed

Bo